Evidence map›Paper›PMID 38627368›Full record

ArticleJournal of aging & social policy2024

Leveraging Existing Datasets to Advance Family Caregiving Research: Opportunities to Measure What Matters.

Rebecca M Goodwin, Rebecca L Utz, Catherine E Elmore, Katherine A Ornstein, Djin L Tay, Lee Ellington, Ken R Smith, Caroline E Stephens

Abstract read
In one paragraph

Article in Journal of aging & social policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Rebecca M GoodwinCollege of Nursing, University of Utah, Salt Lake City, USA.ORCID 0000-0001-8792-8845
Rebecca L UtzCollege of Social and Behavioral Science, University of Utah, Salt Lake City, USA.ORCID 0000-0001-7734-7676
Catherine E ElmoreCollege of Nursing, University of Utah, Salt Lake City, USA.ORCID 0000-0002-5908-8727
Katherine A OrnsteinCenter for Equity in Aging, Johns Hopkins University, Baltimore, USA.ORCID 0000-0001-6270-4423
Djin L TayCollege of Nursing, University of Utah, Salt Lake City, USA.ORCID 0000-0001-5247-0010
Lee EllingtonCollege of Nursing, University of Utah, Salt Lake City, USA.
Ken R SmithCollege of Social and Behavioral Science, University of Utah, Salt Lake City, USA.ORCID 0000-0003-0682-3705
Caroline E StephensCollege of Nursing, University of Utah, Salt Lake City, USA.ORCID 0009-0009-9814-4654

Funding

Interdisciplinary Training in Cancer, Caregiving and End-of-Life CareT32NR013456 · NINR · UNIVERSITY OF UTAH · PI ELLINGTON, LEE A, MOONEY, KATHLEEN H · 2013 to 2022
$3.4M
Improving Palliative Care Access Through Technology (ImPAcTT): A Multi-Component Pilot StudyK76AG054862 · NIA · UNIVERSITY OF UTAH · PI STEPHENS, CAROLINE · 2017 to 2021
$1.2M
Research Collaborative for Family Caregivers of Older AdultsK07AG068185 · NIA · UNIVERSITY OF UTAH · PI ELLINGTON, LEE A · 2020 to 2024
$810k
NIA NIH HHS K07 AG068185NIA NIH HHS K76 AG054862NINR NIH HHS T32 NR013456
6 · The paper itself

Abstract

More than 17.7 million people in the U.S. care for older adults. Analyzing population datasets can increase our understanding of the needs of family caregivers of older adults. We reviewed 14 U.S. population-based datasets (2003-2023) including older adults' and caregivers' data to assess inclusion and measurement of 8 caregiving science domains, with a focus on whether measures were validated and/or unique variables were used. Challenges exist related to survey design, sampling, and measurement. Findings highlight the need for consistent data collection by researchers, state, tribal, local, and federal programs, for improved utility of population-based datasets for caregiving and aging research.

Indexed as

CaregiversAgedAgingData CollectionFamilyHumansSurveys and QuestionnairesUnited StatesBig datacaregiverfamilyhealth equitylong-term services and supportsolder adultpopulation datasecondary datasocial determinants of health

Identifiers

PMID38627368
PMCPMC11141766

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.