Evidence map›Paper›PMID 38623718›Full record

ArticlePalliative medicine2024

How do people in prison access palliative care? A scoping review of models of palliative care delivery for people in prison in high-income countries.

Emma Gilbert, Nick De Viggiani, Joana de Sousa Martins, Tanuka Palit, Jessica Sears, Daniel Knights, Audrey Roulston, Mary Turner, Lucy E Selman

Open access · hybridAbstract readScoping Review
PubMed Full text at PMC Publisher
In one paragraph

Article in Palliative medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
3.3field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 6 citations in OpenAlex.

  1. Article
  2. Review
  3. Article
  4. A Tale of 2 Experiences: Navigating End-of-Life Care With a History of Incarceration.The journals of gerontology. Series A, Biological sciences and medical sciences · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 1 country.

Emma GilbertPalliative and End of Life Care Research Group, Bristol Medical School, University of Bristol, Bristol UK.ORCID 0000-0002-5140-2507
Nick De ViggianiSchool of Health and Social Wellbeing, Unversity of the West of England, UK.ORCID 0000-0002-5132-1184
Joana de Sousa MartinsPalliative and End of Life Care Research Group, Bristol Medical School, University of Bristol, Bristol UK.
Tanuka PalitAcademic Clinical Fellow Centre of Academic Primary Care, Bristol Medical School, University of Bristol, UK.ORCID 0000-0003-1098-4173
Jessica SearsKing's College London, London, UK.
Daniel KnightsUniversity of Cambridge, Cambridge, UK.
Audrey RoulstonProfessor of Social Work in Palliative Care, School of Social Sciences, Education and Social Work Queen's University, Belfast, UK.ORCID 0000-0002-7446-6116
Mary TurnerReader in Health Services Research, University of Huddersfield, Huddersfield, UK.
Lucy E SelmanPalliative and End of Life Care Research Group, Bristol Medical School, University of Bristol, Bristol UK.ORCID 0000-0001-5747-2699
University of Bristol · GBKing's College London · GBQueen's University Belfast · GBUniversity of Cambridge · GBUniversity of Huddersfield · GBUniversity of the West of England · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAn ageing prison population with complex health needs combined with punitive sentencing practices means palliative care for incarcerated individuals is increasingly important. However, there is limited evidence regarding the models of care delivery in high-income countries, and their associated challenges and benefits.

aimTo develop a typology of models of palliative care provision for incarcerated individuals, synthesise evidence of their outcomes and describe facilitators of and challenges in delivering different models of palliative and end-of-life care in prisons.

designScoping review following Arksey and O'Malley, with narrative synthesis. The protocol was registered prospectively (reviewregistry1260). DATA SOURCES: MEDLINE, EMBASE, CINAHL, PsycINFO, the Social Sciences Citation Index and grey literature were searched on 15th March 2023. The Mixed Methods Appraisal Tool (MMAT) was used for quality appraisal.

resultsA total of 16,865 records were screened; 22 peer-reviewed articles and 18 grey literature sources met the inclusion criteria. Three models were identified: Embedded Hospice, Outsourcing Care and Community Collaboration. The Embedded Hospice model shows potential benefits for patients and prisons. Outsourcing Care may miss opportunities for comprehensive care. Collaborative Care relies on proactive prison-community relationships that could be formalised for improvement. Psychosocial and bereavement needs of those dying in prison and their caregivers lack sufficient documentation.

conclusionFurther research is needed to evaluate prison hospice costs and examine how prison hospices impact compassionate release usage. Beyond the USA, policies might formalise care pathways and recognise best practices. Further investigation to address psychosocial needs of people in prison with life-limiting illnesses and post-death bereavement support is required.

Indexed as

Developed CountriesPalliative CarePrisonersDelivery of Health CareHealth Services AccessibilityHumansPrisonsend of life carehospicehospice carejailsPalliative careprisonsscoping review

Identifiers

PMID38623718
PMCPMC11107131
OpenAlexW4394847224

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.