ArticleCommunity mental health journal2024
Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders' Perspectives.
Article in Community mental health journal, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Healthcare Utilisation and Barriers and Facilitators of Healthcare Access for Young People With Intellectual Disability: A Systematic Review.Journal of intellectual disability research : JIDR · 2026Pooled it
- The Transition to Mental Health Services From the Perspectives of Neurodivergent Young People, Caregivers and Mental Health Professionals: A Constructivist Grounded Theory Approach.Journal of autism and developmental disorders · 2026Article
- Barriers to Mental Healthcare for Autistic and Non-Autistic Adults: An Investigation of Number, Severity and Type of Barriers Encountered.Autism : the international journal of research and practice · 2026Article
- Anxiety, Depression, and Care Barriers in Adults With Intellectual and Developmental Disabilities.JAMA network open · 2026Article
- Using transition design to explore transition from adolescence to adulthood.Health care transitions · 2026Article
- An Examination of Health Care Transition Experiences Through Parents' Reflections About Their Sons or Daughters Who Have Intellectual and Developmental Disabilities.Children (Basel, Switzerland) · 2025Article
- Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps.Frontiers in pediatrics · 2025Article
- Adolescent and Caregiver preparation for legal changes at age 18.Health care transitions · 2025Article
- Service access for youth with neurodevelopmental disabilities transitioning to adulthood: service providers' and decision-makers' perspectives on barriers, facilitators and policy recommendations.Frontiers in public health · 2025Article
- Health care transition recommendations for young people with intellectual and developmental disabilities and co-occurring mental health conditions: Stakeholder survey findings.Health care transitions · 2024Article
- A Consultation Model for Intellectual and Developmental Disability Care.Journal of the American Board of Family Medicine : JABFMArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Youth and young adults (YYA) with intellectual and developmental disabilities (IDD) have high rates of co-occurring mental health (MH) conditions. The time during transition from pediatric to adult health and mental health care can be a very challenging, with risk of loss of services leading to poor outcomes. This study aimed to explore barriers to transition from pediatric to adult health and mental health care and services for individuals with IDD and co-occurring MH conditions, by eliciting the view of stakeholders, including disability advocates. Qualitative analysis was conducted using grounded theory, and themes were coded based upon the social-ecological model (SEM). We generated themes into multiple levels: the individual level, the family level, the provider level, the systems of care level, and the societal level. Stakeholders expressed a critical need to improve coordination between systems, and to increase provider availability to care for YYA with IDD and co-occurring MH conditions.
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