Evidence map›Paper›PMID 38618141›Full record

ArticleRheumatology advances in practice2024

Impact of a resilience-building energy management intervention for people with systemic sclerosis: a mixed methods study.

Yen T Chen, Alexandra E Harper, Tiffany Phanhdone, Mary Alore, Sheri Hicks, Adam Pape, Gina M Jay, Shannen Bolde, Jennie Feldpausch, Timothy C Guetterman and 2 more

Registry-linked trialOpen access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Rheumatology advances in practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04908943 (RENEW Scleroderma), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.7field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04908943 nacompletednot on this map

RENEW Scleroderma: A Peer-Mentored, Web Intervention for Resilience-based, Energy Management to Enhance Wellbeing and Fatigue

TypeinterventionalSponsorUniversity of MichiganRan2021 to 2023Enrolled174ConditionsSclerodermaArmsRENEW
3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 4 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 2 institutions in 1 country.

Yen T ChenDivision of Rheumatology, Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.ORCID https://orcid.org/0000-0001-7723-6431
Alexandra E HarperDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.ORCID https://orcid.org/0000-0003-0623-3879
Tiffany PhanhdoneRush University Medical Center, Chicago, IL, USA.
Mary AloreDivision of Rheumatology, Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.
Sheri HicksDivision of Rheumatology, Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.
Adam PapeDivision of Rheumatology, Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.
Gina M JayDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.
Shannen BoldeDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.
Jennie FeldpauschDivision of Rheumatology, Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.
Timothy C GuettermanDepartment of Family Medicine, University of Michigan, Ann Arbor, MI, USA.
Dinesh KhannaDivision of Rheumatology, Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.ORCID https://orcid.org/0000-0003-1412-4453
Susan L MurphyDivision of Rheumatology, Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.ORCID https://orcid.org/0000-0001-7924-0012
University of Michigan · USRush University Medical Center · US

Funding

TRAINING OF ARTHRITIS RESEARCH SCIENTISTST32AR007080 · NIAMS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Jason Knight · 1986 to 2026
$6.3M
Outcomes Research in Rheumatic DiseasesK24AR063120 · NIAMS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI KHANNA, DINESH · 2012 to 2022
$1.6M
NIAMS NIH HHS K24 AR063120NIAMS NIH HHS T32 AR007080
6 · The paper itself

Abstract

Objectives: People with SSc often experience fatigue, which significantly affects daily life functioning and quality of life. We aimed to explore participants' experiences of a peer health-coached resilience-building energy management to enhance well-being (RENEW) intervention on symptoms and well-being and to use mixed methods to compare how SSc duration influenced the experiences of participants who had clinically significant fatigue improvement Methods: Semi-structured interviews were conducted with 21 participants from the parent clinical trial randomized to the RENEW intervention. Data were analysed using the rigorous and accelerated data reduction technique combined with thematic content analysis. A mixed methods approach used a joint display to identify themes related to the impact of SSc duration on fatigue improvement status. Participants were categorized into short/improvement, short/limited improvement, long/improvement, and long/limited improvement. Results: Our team generated four themes: participant and peer health-coach relationship, physical and psychological well-being improvement, need for a tailored approach and easy program access through technology. Mixed methods analysis revealed that, regardless of SSc duration, participants with improved fatigue reported increasing self-awareness of SSc-related symptoms and learning coping strategies to manage fatigue. Participants in the short/improvement group reported preferences for slower pacing of the program and pairing with a coach with similar symptom severity. Participants in the long/limited improvement group sought SSc-specific symptom management information. Conclusion: Incorporating peer health coaches and technology is beneficial for self-management interventions for people with SSc. Future tailoring of RENEW based on SSc duration and symptom severity is needed. Clinical trial registration number: clinicatrials.gov, NCT04908943.

Indexed as

fatiguemixed methods studypeer health coachresiliencesymptom managementsystemic sclerosiswell-being

Identifiers

PMID38618141
PMCPMC11015950
OpenAlexW4392613783

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.