Evidence map›Paper›PMID 38609321›Full record

ArticleRMD open2024

Understanding the psychosocial determinants of effective disease management in rheumatoid arthritis to prevent persistently active disease: a qualitative study.

Nkasi Stoll, Mrinalini Dey, Sam Norton, Maryam Adas, Ailsa Bosworth, Maya H Buch, Andrew Cope, Heidi Lempp, James Galloway, Elena Nikiphorou

Open access · goldAbstract read
In one paragraph

Article in RMD open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
6.1field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 13 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 2 institutions in 1 country.

Nkasi StollPsychological Medicine, King's College London Institute of Psychiatry, Psychology & Neuroscience, London, UK nkasi.1.stoll@kcl.ac.uk.ORCID 0000-0003-0427-3367
Mrinalini DeyDepartment of Inflammation Biology, King's College London, London, UK.ORCID 0000-0001-6858-4338
Sam NortonAcademic Department of Rheumatology, King's College London, London, UK.ORCID 0000-0003-1714-9963
Maryam AdasSchool of Immunology & Microbial Sciences, King's College London Faculty of Life Sciences & Medicine, London, UK.
Ailsa BosworthNational Rheumatoid Arthritis Society, Berkshire, UK.
Maya H BuchCentre for Musculoskeletal Research, The University of Manchester, Manchester, UK.ORCID 0000-0002-8962-5642
Andrew CopeCentre for Rheumatic Diseases, King's College London, London, UK.
Heidi LemppDepartment of Inflammation Biology, King's College London, London, UK.
James GallowaySchool of Medical Education, King's College London, London, UK.ORCID 0000-0002-1230-2781
Elena NikiphorouDepartment of Inflammation Biology, King's College London, London, UK.ORCID 0000-0001-6847-3726
King's College London · GBUniversity of Manchester · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAccording to epidemiological studies, psychosocial factors are known to be associated with disease activity, physical activity, pain, functioning, treatment help-seeking, treatment waiting times and mortality in people with rheumatoid arthritis (RA). Limited qualitative inquiry into the psychosocial factors that add to RA disease burden and potential synergistic interactions with biological parameters makes it difficult to understand patients' perspectives from the existing literature.

aimThis study aimed to gather in-depth patient perspectives on psychosocial determinants that drive persistently active disease in RA, to help guide optimal patient care.

methodsPatient research partners collaborated on the research design and materials. Semistructured interviews and focus groups were conducted online (in 2021) with patients purposively sampled from diverse ethnicities, primary languages, employment status and occupations. Data were analysed using inductive thematic analysis.

results45 patients participated across 28 semistructured interviews and three focus groups. Six main themes on psychosocial determinants that may impact RA management were identified: (1) healthcare systems experiences, (2) patient education and health literacy, (3) employment and working conditions, (4) social and familial support, (5) socioeconomic (dis)advantages, and (6) life experiences and well-being practices.

conclusionThis study emphasises the importance of clinicians working closely with patients and taking a holistic approach to care that incorporates psychosocial factors into assessments, treatment plans and resources. There is an unmet need to understand the relationships between interconnected biopsychosocial factors, and how these may impact on RA management.

Indexed as

Arthritis, RheumatoidCost of IllnessDisease ManagementFocus GroupsHumansQualitative ResearchHealth-Related Quality Of LifePsychologyQualitative researchRheumatoid ArthritisTreatment

Identifiers

PMID38609321
PMCPMC11029421
OpenAlexW4394761308

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.