Evidence map›Paper›PMID 38607941›Full record

ArticleIntegrated healthcare journal2021

Managing type 1 diabetes during the COVID-19 pandemic is a team effort: a qualitative study of the experiences of young people and their parents.

Anne Parkinson, Nicola Brew-Sam, Sally Hall Dykgraaf, Christopher Nolan, Antony Lafferty, Robert Schmidli, Ellen Brown, Karen Brown, Lachlan Pedley, Harry Ebbeck and 4 more

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Article in Integrated healthcare journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Anne ParkinsonDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.ORCID 0000-0001-9053-0707
Nicola Brew-SamDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.
Sally Hall DykgraafMedical School, Australian National University, Canberra, Australian Capital Territory, Australia.
Christopher NolanMedical School, Australian National University, Canberra, Australian Capital Territory, Australia.
Antony LaffertyMedical School, Australian National University, Canberra, Australian Capital Territory, Australia.
Robert SchmidliMedical School, Australian National University, Canberra, Australian Capital Territory, Australia.
Ellen BrownDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.
Karen BrownDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.
Lachlan PedleyDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.
Harry EbbeckDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.
Elizabeth PedleyDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.
Kristine WrightDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.
Christine PhillipsMedical School, Australian National University, Canberra, Australian Capital Territory, Australia.
Jane DesboroughDepartment of Health Services Research and Policy, Australian National University, Canberra, Australian Capital Territory, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: To explore the experiences of young people with type 1 diabetes mellitus (T1DM) and their parents in accessing integrated family-centred care in the Australian Capital Territory during the COVID-19 pandemic. Methods and analysis: This is a pragmatic, qualitative descriptive study for which we conducted semistructured interviews with 11 young people with T1DM aged 12-16 years and 10 of their parents who attended an outpatient diabetes service in Canberra, Australia. Thematic analysis was conducted in accordance with the methods outlined by Braun and Clarke. Results: Three themes were identified: feeling vulnerable, new ways of accessing care and trust in the interdisciplinary diabetes healthcare team. Participants believed having T1DM made them more vulnerable to poor outcomes if they contracted COVID-19, resulting in avoidance of face-to-face care. Telephone consultations offered a convenient and contact-free way to undertake 3-monthly reviews. The greatest difference between telephone and face-to-face consultations was not having access to the whole interdisciplinary diabetes support team at one appointment, physical examination and haemoglobin A1c testing during telehealth consultations. Participants trusted that clinicians would arrange face-to-face meetings if required. Some felt a video option might be better than telephone, reflecting in part the need for more training in communication skills for remote consultations. Conclusion: Young people with T1DM and their parents require collaborative care and contact with multiple healthcare professionals to facilitate self-management and glycaemic control. While telephone consultations offered convenient, safe, contact-free access to healthcare professionals during the COVID-19 pandemic, the added value of video consultations and facilitating access to the whole interdisciplinary diabetes support team need to be considered in future clinical implementation of telehealth.

Indexed as

diabetes mellituspaediatricspatient preferencequalitative researchtelemedicine

Identifiers

PMID38607941
PMCPMC8593267

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.