Evidence map›Paper›PMID 38605315›Full record

ArticleBMC palliative care2024

Building public engagement and access to palliative care and advance care planning: a qualitative study.

Rachel Black, Felicity Hasson, Paul Slater, Esther Beck, Sonja McIlfatrick

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
3.8field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 7 citations in OpenAlex.

  1. Opioid consumption, availability, and policy alignment in primary hospice and palliative care in China: a multicomponent comparative analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  2. Thematic Analysis of Barriers to Completion of a Healthcare Proxy at a Comprehensive Cancer Center.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Rachel BlackInstitute of Nursing and Health Research, Ulster University, Belfast, BT15 1AD, Northern Ireland.ORCID http://orcid.org/0000-0001-8952-0501
Felicity HassonInstitute of Nursing and Health Research, Ulster University, Belfast, BT15 1AD, Northern Ireland.ORCID http://orcid.org/0000-0002-8200-9732
Paul SlaterInstitute of Nursing and Health Research, Ulster University, Belfast, BT15 1ED, Northern Ireland.ORCID http://orcid.org/0000-0003-2318-0705
Esther BeckInstitute of Nursing and Health Research, Ulster University, Belfast, BT15 1ED, Northern Ireland.ORCID http://orcid.org/0000-0002-8783-7625
Sonja McIlfatrickInstitute of Nursing and Health Research, Ulster University, Belfast, BT15 1AD, Northern Ireland. sj.mcilfatrick@ulster.ac.uk.ORCID http://orcid.org/0000-0002-1010-4300
University of Ulster · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundResearch evidence suggests that a lack of engagement with palliative care and advance care planning could be attributed to a lack of knowledge, presence of misconceptions and stigma within the general public. However, the importance of how death, dying and bereavement are viewed and experienced has been highlighted as an important aspect in enabling public health approaches to palliative care. Therefore, research which explores the public views on strategies to facilitate engagement with palliative care and advance care planning is required.

methodsExploratory, qualitative design, utilising purposive random sampling from a database of participants involved in a larger mixed methods study. Online semi-structured interviews were conducted (n = 28) and analysed using reflexive thematic analysis. Thematic findings were mapped to the social-ecological model framework to provide a holistic understanding of public behaviours in relation to palliative care and advance care planning engagement.

resultsThree themes were generated from the data: "Visibility and relatability"; "Embedding opportunities for engagement into everyday life"; "Societal and cultural barriers to open discussion". Evidence of interaction across all five social ecological model levels was identified across the themes, suggesting a multi-level public health approach incorporating individual, social, structural and cultural aspects is required for effective public engagement.

conclusionsPublic views around potential strategies for effective engagement in palliative care and advance care planning services were found to be multifaceted. Participants suggested an increase in visibility within the public domain to be a significant area of consideration. Additionally, enhancing opportunities for the public to engage in palliative care and advance care planning within everyday life, such as education within schools, is suggested to improve death literacy and reduce stigma. For effective communication, socio-cultural aspects need to be explored when developing strategies for engagement with all members of society.

Indexed as

Advance Care PlanningPalliative CareHumansPopulation GroupsPublic HealthQualitative ResearchSocial StigmaACPAdvance care planningDeath and dying.Death literacyPalliative carePublic engagementPublic healthSocial Ecological Model

Identifiers

PMID38605315
PMCPMC11010379
OpenAlexW4394758561

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.