Evidence map›Paper›PMID 38595117›Full record

ArticlePsychiatric services (Washington, D.C.)2024

Exploring Data Collection Priorities of Community Partners in Early Psychosis Care.

Mark Savill, Lindsay M Banks, Valerie L Tryon, Sabrina Ereshefsky, Kathleen E Nye, Renata M Botello, Viviana Padilla, Karina Muro, Rachel L Loewy, Tara A Niendam

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Psychiatric services (Washington, D.C.), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Mark SavillDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Lindsay M BanksDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Valerie L TryonDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Sabrina EreshefskyDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Kathleen E NyeDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Renata M BotelloDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Viviana PadillaDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Karina MuroDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Rachel L LoewyDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).
Tara A NiendamDepartment of Psychiatry and Behavioral Health Sciences, University of California, Davis, Davis (Savill, Banks, Tryon, Ereshefsky, Nye, Botello, Padilla, Muro, Niendam); Weill Institute for Neurosciences, University of California, San Francisco, San Francisco (Loewy).

Funding

California Collaborative Network to Promote Data Driven Care and Improve Outcomes in Early Psychosis (EPI-CAL)R01MH120555 · NIMH · UNIVERSITY OF CALIFORNIA AT DAVIS · PI NIENDAM, TARA ANN · 2019 to 2024
$7.9M
NIMH NIH HHS R01 MH120555
6 · The paper itself

Abstract

objectiveLearning health care networks can significantly improve the effectiveness, consistency, and cost-effectiveness of care delivery. As part of a data harmonization process, incorporation of the perspectives of community partners to maximize the relevance and utility of the data is critical.

methodsA mixed-methods focus group study was conducted with early psychosis program providers, leadership, service users, and family members to explore their priorities regarding data collection in early psychosis care. Focus group transcripts were analyzed through thematic analysis.

resultsTwenty-two focus groups comprising 178 participants were conducted across 10 early psychosis programs. Participants considered functioning, quality of life, recovery, and symptoms of psychosis as key outcomes to assess, although variation by participants' roles was also evident. Participants emphasized the clinical utility of assessing a broad range of predictors of care outcomes, favored a broad conceptualization of the constructs assessed, and indicated a preference for client-reported measures. Participants also emphasized the importance of surveys adopting a recovery-oriented, strengths-based approach.

conclusionsLarge-scale aggregation of health care data collected as part of routine care offers opportunities for research and may have a positive impact on care delivery and quality improvement activities. However, these benefits are contingent on the data being both relevant and accessible to those who deliver and receive such care. This study highlights an approach that may inform the development of core assessment batteries used, optimizing the utility of such data for all community partners.

Indexed as

Community Mental Health ServicesFocus GroupsPsychotic DisordersAdultData CollectionFemaleHumansMaleMiddle AgedYoung AdultCommunity consultationEarly psychosisPsychiatric assessmentSchizophrenia

Identifiers

PMID38595117
PMCPMC11366502

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.