Evidence map›Paper›PMID 38593431›Full record

ArticleJournal of medical Internet research2024

Converge or Collide? Making Sense of a Plethora of Open Data Standards in Health Care.

Guy Tsafnat, Rachel Dunscombe, Davera Gabriel, Grahame Grieve, Christian Reich

Abstract readEditorial
In one paragraph

Article in Journal of medical Internet research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Towards a Compositional Framework for Describing Human Phenotypes.Advanced science (Weinheim, Baden-Wurttemberg, Germany) · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Guy TsafnatEvidentli Pty Ltd, Surry Hills, Australia.ORCID 0000-0003-4353-2026
Rachel Dunscombe *openEHR International, St. Helens, United Kingdom.ORCID 0000-0002-2266-7063
Davera Gabriel *Evidentli Pty Ltd, Surry Hills, Australia.ORCID 0000-0001-9041-4597
Grahame Grieve *Health Level 7 International, Ann Arbor, MI, United States.ORCID 0000-0003-3438-2759
Christian Reich *OHDSI OMOP + FHIR Working Group, .ORCID 0000-0002-3641-055X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Practitioners of digital health are familiar with disjointed data environments that often inhibit effective communication among different elements of the ecosystem. This fragmentation leads in turn to issues such as inconsistencies in services versus payments, wastage, and notably, care delivered being less than best-practice. Despite the long-standing recognition of interoperable data as a potential solution, efforts in achieving interoperability have been disjointed and inconsistent, resulting in numerous incompatible standards, despite the widespread agreement that fewer standards would enhance interoperability. This paper introduces a framework for understanding health care data needs, discussing the challenges and opportunities of open data standards in the field. It emphasizes the necessity of acknowledging diverse data standards, each catering to specific viewpoints and needs, while proposing a categorization of health care data into three domains, each with its distinct characteristics and challenges, along with outlining overarching design requirements applicable to all domains and specific requirements unique to each domain.

Indexed as

Delivery of Health CareHumansclinical datadigital healthhealth carehealth care datainteroperabilityopen data standards

Identifiers

PMID38593431
PMCPMC11040436

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.