Evidence map›Paper›PMID 38591848›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2024

Gaining consensus on emotional wellbeing themes and preferences for digital intervention type and content to support the mental health of young people with long-term health conditions: A Delphi study.

Jennie Brown, Lauren Cox, Kathleen Mulligan, Stephanie Wilson, Michelle Heys, Polly Livermore, Suzy Gray, Angeliki Bogosian

Open access · goldAbstract readConsensus Statement
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
3.4field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 1 country.

Jennie BrownSchool of Health and Psychological Sciences, City University of London, London, UK.ORCID 0009-0006-4292-0552
Lauren CoxSchool of Health and Psychological Sciences, City University of London, London, UK.
Kathleen MulliganSchool of Health and Psychological Sciences, City University of London, London, UK.ORCID 0000-0002-6003-3029
Stephanie WilsonSchool of Mathematics, Computer Science and Engineering, City University of London, London, UK.
Michelle HeysEast London NHS Foundation Trust, London, UK.
Polly LivermoreGreat Ormond Street Institute of Child Health (GOS ICH), London, UK.
Suzy GrayGreat Ormond Street Institute of Child Health (GOS ICH), London, UK.
Angeliki BogosianSchool of Health and Psychological Sciences, City University of London, London, UK.
City, University of London · GBGreat Ormond Street Hospital · GBUniversity of London · GB

Funding

eNurture ES/S004467/1
6 · The paper itself

Abstract

backgroundYoung people (YP) with long-term conditions (LTCs) are at greater risk of psychological distress than those without LTCs. Despite this, there is a scarcity of quality digital interventions designed to help improve mental wellbeing in this population. The aim of this study was to determine what YP, parents and health professionals preferred for future interventions.

methodsTwenty-six YP with asthma, diabetes and/or epilepsy (the three most common LTCs in YP), 23 parents of YP with LTCs and 10 health professionals mainly in paediatric specialisms (total n = 59) took part in an online Delphi study to gain consensus (set at 75% agreement) on four questions across three rounds. Participants ordered psychological themes that may be experienced by YP with LTCs by importance and ranked digital intervention types and delivery modes by importance or usefulness. The most common results were reported if no consensus was reached by round 3.

resultsParticipants preferred a mobile phone app (73% agreement) and a mixture of one-on-one and group support for an intervention (75% agreement). The two highest ranked psychological themes were anxiety (44%) and wanting to appear 'normal' (38%), and the top intervention type was 'general counselling' (54% agreement).

conclusionThere was a clear desire for an app to help with the psychological aspects of living with LTCs and for a combination of one-to-one and group intervention elements. Anxiety and wanting to appear 'normal' might be two closely linked psychological challenges that could be addressed by a single intervention. IMPLICATIONS: The results will be important to consider for a future intervention, although further consultation will be needed for app development. PATIENT OR PUBLIC CONTRIBUTION: Two YP with a LTC provided feedback on the study protocol including the aims and procedures of the project. Another six YP with LTCs were consulted on an early draft of the study questionnaire (the four questions), which was subsequently revised. Once the project began, a patient and public involvement group consisting of two YP with LTCs and one parent of a YP with an LTC gave feedback on the research process, lay report of the results and dissemination plan.

Indexed as

EmotionsMental HealthAdolescentAnxietyChildDelphi TechniqueHumansDelphi methoddigital interventionsmental wellbeingyoung people with long‐term conditions

Identifiers

PMID38591848
PMCPMC11003273
OpenAlexW4394606049

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.