Evidence map›Paper›PMID 38590546›Full record

ArticleFrontiers in rehabilitation sciences2024

Alignment of Canada's COVID-19 policy response with barriers and facilitators for coping reported by caregivers of youth with developmental delays, disorders, and disabilities.

Anna Katalifos, Mayada Elsabbagh, Afiqah Yusuf, Sakiko Yamaguchi, Julie Scorah, Nicola Wright, Mandy Steiman, Andy Shih, Keiko Shikako

Abstract read
In one paragraph

Article in Frontiers in rehabilitation sciences, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Anna KatalifosAzrieli Centre for Autism Research, Montreal Neurological Hospital-Institute, McGill University Health Centre, Montreal, QC, Canada.
Mayada ElsabbaghAzrieli Centre for Autism Research, Montreal Neurological Hospital-Institute, McGill University Health Centre, Montreal, QC, Canada.
Afiqah YusufAzrieli Centre for Autism Research, Montreal Neurological Hospital-Institute, McGill University Health Centre, Montreal, QC, Canada.
Sakiko YamaguchiSchool of Physical and Occupational Therapy, Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada.
Julie ScorahAzrieli Centre for Autism Research, Montreal Neurological Hospital-Institute, McGill University Health Centre, Montreal, QC, Canada.
Nicola WrightDepartment of Psychology, Faculty of Health, Psychology, and Social Care, Manchester Metropolitan University, Manchester, United Kingdom.
Mandy SteimanAzrieli Centre for Autism Research, Montreal Neurological Hospital-Institute, McGill University Health Centre, Montreal, QC, Canada.
Andy ShihScientific Affairs, Autism Speaks, New York, NY, United States.
Keiko ShikakoSchool of Physical and Occupational Therapy, Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: The UNICEF-WHO Global Report on Developmental Delays, Disorders, and Disabilities is an ongoing initiative aimed at increasing awareness, compiling data, providing guidance on strengthening health systems, and engaging country-level partners. Data from its caregiver survey assessing impacts of the COVID-19 pandemic showed that half of youths with developmental delays and disabilities (DDDs) and their caregivers struggled to cope, with a significant portion reporting a lack of supports and difficulty managing the worsening of the child's symptoms in isolation. Governments created service strategies supporting vulnerable groups. Little is known about the alignment between COVID-19 policies for persons with disabilities and their lived experiences. Contextualizing caregivers' experiences can promote the development of tailored public supports for these families following a public health crisis. Methods: Online survey data were collected from June-July 2020, leading to a convenience sample of caregivers of youth with DDDs across Canada. Respondents answered two open-ended questions regarding challenges and coping strategies during the pandemic. We conducted a thematic analysis of responses using inductive coding on NVivo software. Overarching codes derived from the dataset were contextualized using an analysis of provincial policies published during the pandemic. Parallels with these policies supported the exploration of families' and youths' experiences during the same period. Results: Five hundred and seventy-six ( Conclusion: Prioritizing needs of families of youths with DDDs during public health emergencies can significantly impact their experiences and mental health. Enhancing financial benefits, providing telehealth services, and creating inclusive public play spaces are priority areas as we navigate the post-pandemic landscape.

Indexed as

caregivercopingCOVID-19 pandemicdevelopmental disabilitypolicy & disabilities

Identifiers

PMID38590546
PMCPMC10999642

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.