Evidence map›Paper›PMID 38588389›Full record

ArticleAJOB empirical bioethics

Public Perspectives on Investigative Genetic Genealogy: Findings from a National Focus Group Study.

Jacklyn Dahlquist, Jill O Robinson, Amira Daoud, Whitney Bash-Brooks, Amy L McGuire, Christi J Guerrini, Stephanie M Fullerton

Abstract read
In one paragraph

Article in AJOB empirical bioethics. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Review
  2. Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jacklyn DahlquistDepartment of Bioethics and Humanities, University of Washington School of Medicine, Seattle, Washington, USA.
Jill O RobinsonBaylor College of Medicine, Center for Medical Ethics and Health Policy, Houston, Texas, USA.
Amira DaoudBaylor College of Medicine, Center for Medical Ethics and Health Policy, Houston, Texas, USA.
Whitney Bash-BrooksBaylor College of Medicine, Center for Medical Ethics and Health Policy, Houston, Texas, USA.
Amy L McGuireBaylor College of Medicine, Center for Medical Ethics and Health Policy, Houston, Texas, USA.ORCID 0000-0002-7819-519X
Christi J GuerriniBaylor College of Medicine, Center for Medical Ethics and Health Policy, Houston, Texas, USA.
Stephanie M FullertonDepartment of Bioethics and Humanities, University of Washington School of Medicine, Seattle, Washington, USA.

Funding

IGG on the Internet: Characterizing Public Perspectives on Law Enforcement Use of Genetic Genealogy Data in Social MediaR01HG011268 · NHGRI · BAYLOR COLLEGE OF MEDICINE · PI GUERRINI, CHRISTI, MCGUIRE, AMY L · 2020 to 2023
$2.4M
NHGRI NIH HHS R01 HG011268
6 · The paper itself

Abstract

backgroundInvestigative genetic genealogy (IGG) is a technique that involves uploading genotypes developed from perpetrator DNA left at a crime scene, or DNA from unidentified remains, to public genetic genealogy databases to identify genetic relatives and, through the creation of a family tree, the individual who was the source of the DNA. As policymakers demonstrate interest in regulating IGG, it is important to understand public perspectives on IGG to determine whether proposed policies are aligned with public attitudes.

methodsWe conducted eight focus groups with members of the public (

resultsParticipants were supportive of IGG in most scenarios, especially for cold and violent cases. The favorable attitudes toward IGG were, however, tempered by distrust of law enforcement among some participants. All participants agreed that databases must inform users if IGG is allowed, but they did not agree on how individual database users should be allowed to opt out or whether to notify them if their data are involved in specific investigations. All participants agreed that IGG should be subject to some prescriptive guidelines, regulations, or accountability mechanisms.

conclusionsThese findings suggest broad public support for IGG, and interest in developing systems of accountability for its practice. Our study provides useful insight for policy makers, genomic database stewards, law enforcement, and other stakeholders in IGG's practice, and suggests multiple directions for future research.

Indexed as

Focus GroupsPublic OpinionAdultAgedAttitudeDatabases, GeneticFemaleForensic GeneticsGenealogy and HeraldryGenetic PrivacyGenotypeHumansInformed ConsentLaw EnforcementMaleMiddle Agedfocus groupsforensic geneticsInvestigative genetic genealogypolicypublic perspectives

Identifiers

PMID38588389
PMCPMC11458831

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.