Evidence map›Paper›PMID 38584503›Full record

ArticleThe Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association2025

A Conceptual Thematic Framework of Psychological Adjustment in Caregivers of Children with Craniofacial Microsomia.

Nicola M Stock, Bruna Costa, Jade Parnell, Alexis L Johns, Canice E Crerand, Kristin Billaud Feragen, Laura P Stueckle, Angela Mills, Leanne Magee, Matthew Hotton and 4 more

Open access · hybridAbstract read
In one paragraph

Article in The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
7.8field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 7 citations in OpenAlex.

  1. Participant Perspectives on Data Sharing in Clinical Craniofacial Research: Qualitative Interviews With Participants With Craniofacial Microsomia and Their Caregivers.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
  2. Article
  3. Caring for a Child with a Cleft Lip and/or Palate: A Narrative Review.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2025
    Review
  4. Article
  5. Surgical decision-making regarding hearing and ear reconstruction in craniofacial microsomia: Exploring caregiver narratives.Journal of cranio-maxillo-facial surgery : official publication of the European Association for Cranio-Maxillo-Facial Surgery · 2025
    Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 8 institutions in 3 countries.

Nicola M StockCentre for Appearance Research, University of the West of England, Bristol, UK.ORCID 0000-0002-1285-691X
Bruna CostaCentre for Appearance Research, University of the West of England, Bristol, UK.ORCID 0000-0001-8275-695X
Jade ParnellCentre for Appearance Research, University of the West of England, Bristol, UK.
Alexis L JohnsDivision of Plastic and Maxillofacial Surgery, Children's Hospital Los Angeles, Los Angeles, CA, USA.ORCID 0000-0003-2029-5873
Canice E CrerandNationwide Children's Hospital, Columbus, OH, USA.ORCID 0000-0003-0040-6396
Kristin Billaud FeragenCentre for Rare Disorders, Oslo University Hospital, Oslo, Norway.ORCID 0000-0002-0329-5671
Laura P StueckleCenter for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA.
Angela MillsCenter for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA.
Leanne MageeBuerger Center for Advanced Pediatric Care, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Matthew HottonOxford Institute of Clinical Psychology Training and Research, University of Oxford, Oxford, England.ORCID 0000-0003-4400-0320
Melissa TumblinCenter for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA.
Amy ScheferCenter for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA.
Amelia F DrakeDepartment of Otolaryngology/Head and Neck Surgery, University of North Carolina at Chapel School of Medicine, Chapel Hill, NC, USA.
Carrie L HeikeCenter for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA.ORCID 0000-0003-2178-7730
Seattle Children's Hospital · USUniversity of the West of England · GBChildren's Hospital of Los Angeles · USChildren's Hospital of Philadelphia · USNationwide Children's Hospital · USOslo University Hospital · NOUniversity of North Carolina at Chapel Hill · USUniversity of Oxford · GB

Funding

Transform Dissemination and Implementation Science in CTSA ProgramsUL1TR002319 · NCATS · UNIVERSITY OF WASHINGTON · PI John K. Amory · 2017 to 2026
$100.0M
NCCIH Supplement to NCATS/CTSA Program for KL2 Scholars - M. SoddersKL2TR002317 · NCATS · UNIVERSITY OF WASHINGTON · PI Christy Michelle McKinney · 2017 to 2026
$14.5M
NRSA Training CoreTL1TR002318 · NCATS · UNIVERSITY OF WASHINGTON · PI Megan Moore · 2017 to 2026
$8.4M
Craniofacial microsomia: Accelerating Research and Education (CARE)R01DE029510 · NIDCR · SEATTLE CHILDREN'S HOSPITAL · PI HEIKE, CARRIE LYN, STOCK, NICOLA · 2020 to 2024
$3.2M
NCATS NIH HHS KL2 TR002317NCATS NIH HHS TL1 TR002318NCATS NIH HHS UL1 TR002319NIDCR NIH HHS R01 DE029510
6 · The paper itself

Abstract

ObjectiveChildren with craniofacial microsomia (CFM) have complex healthcare needs, resulting in evaluations and interventions from infancy onward. Yet, little is understood about families' treatment experiences or the impact of CFM on caregivers' well-being. To address this gap, the NIH-funded 'Craniofacial microsomia: Accelerating Research and Education (CARE)' program sought to develop a conceptual thematic framework of caregiver adjustment to CFM.DesignCaregivers reported on their child's medical and surgical history. Narrative interviews were conducted with US caregivers (

Indexed as

Adaptation, PsychologicalCaregiversGoldenhar SyndromeParentsAdolescentAdultChildChild, PreschoolFemaleHumansInterviews as TopicMaleQualitative Researchcraniofacial microsomiaevidence-based practicefamilial adjustmentfeedingmaternal factorsmental health supportparental perceptionpsychosocial adjustmentquality of lifeteam care

Identifiers

PMID38584503
PMCPMC11458819
OpenAlexW4394576251

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.