Evidence map›Paper›PMID 38578477›Full record

ArticleThe European journal of health economics : HEPAC : health economics in prevention and care2025

The performance of the EQ-HWB-S as a measure of quality-of-life of caregivers in families that have experienced adverse events.

Cate Bailey, Kim Dalziel, Leanne Constable, Nancy J Devlin, Harriet Hiscock, Helen Skouteris, Tessa Peasgood

Abstract read
In one paragraph

Article in The European journal of health economics : HEPAC : health economics in prevention and care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Assessing the dimensionality of the EQ-HWB-25 alongside EQ-5D-5L, QOL-ACC and ASCOT in an older adult population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  6. Validation of EQ-HWB-9 among Chinese college students based on a nationwide survey.The European journal of health economics : HEPAC : health economics in prevention and care · 2026
    Article
  7. Article
  8. Article
  9. EQ Health and Wellbeing EQ-HWB: A Psychometric Assessment Across 6 Conditions and the General Population in the United Kingdom.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2025
    Article
  10. The psychometric performance of the EQ-HWB-9 for measuring health and wellbeing in a general population sample from Australia and New Zealand.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  11. Article
  12. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Cate BaileyMelbourne Health Economics, Melbourne School of Population and Global Health, The University of Melbourne, Level 4, 207 Bouverie St, Carlton, VIC, 3053, Australia. cate.bailey@unimelb.edu.au.ORCID http://orcid.org/0000-0001-5030-430X
Kim DalzielMelbourne Health Economics, Melbourne School of Population and Global Health, The University of Melbourne, Level 4, 207 Bouverie St, Carlton, VIC, 3053, Australia.ORCID http://orcid.org/0000-0003-4972-8871
Leanne ConstableHealth Services and Economics, Murdoch Children's Research Institute, Melbourne, VIC, Australia.ORCID http://orcid.org/0000-0002-5692-8882
Nancy J DevlinMelbourne Health Economics, Melbourne School of Population and Global Health, The University of Melbourne, Level 4, 207 Bouverie St, Carlton, VIC, 3053, Australia.ORCID http://orcid.org/0000-0002-1561-5361
Harriet HiscockHealth Services and Economics, Murdoch Children's Research Institute, Melbourne, VIC, Australia.ORCID http://orcid.org/0000-0003-3017-2770
Helen SkouterisHealth and Social Care Unit, School of Public Health and Preventive Medicine, Monash University, Victoria, Australia.ORCID http://orcid.org/0000-0001-9959-5750
Tessa PeasgoodMelbourne Health Economics, Melbourne School of Population and Global Health, The University of Melbourne, Level 4, 207 Bouverie St, Carlton, VIC, 3053, Australia.ORCID http://orcid.org/0000-0001-8024-7801

Funding

EuroQol Research Foundation RA-295
6 · The paper itself

Abstract

purposeThe recently developed EQ Health and Wellbeing Instrument (EQ-HWB) is a broad, generic measure of quality-of-life designed to be suitable for caregivers. The aim of this study was to investigate performance and validity of the 9-item version (EQ-HWB-S) for caregivers where families had experienced adverse-life-events.

methodsUsing survey data from caregivers of children aged 0-8 years attending a community-health centre in 2021-2022, the general performance, feasibility, convergent and known-group validity, responsiveness-to-change, and test-retest reliability of the EQ-HWB-S was assessed. Twelve semi-structured interviews were conducted with survey respondents to assess acceptability and content validity.

resultsThe sample included  234 caregivers at baseline (81% female, mean age 36-years, 38% Australian-born) and 190 at 6-months follow-up. Most EQ-HWB-S item responses were evenly spread, except for 'Mobility'. The instrument showed good convergent validity with psychological distress (Kessler 6 (K6)) and personal-wellbeing (PWI-A) scales. EQ-HWB-S level sum-scores and preference-weighted scores were significantly different in all known-group analyses, in expected directions, and the instrument was responsive to change. For test-retest reliability, Intraclass Correlation Coefficients were excellent and individual item Kappa scores were moderate. The instrument was well received by interviewees who found the questions clear and relevant. The items were appropriate for parents experiencing adversity and carers of children with additional needs.

conclusionThe EQ-HWB-S appeared valid, responsive to change, feasible, and well accepted by caregivers. By demonstrating the validity of the EQ-HWB-S in this hard-to-reach population of caregivers in families experiencing adverse events, this study adds to existing international evidence supporting its use.

Indexed as

CaregiversQuality of LifeAdultAustraliaChildChild, PreschoolFemaleHumansInfantInfant, NewbornMaleMiddle AgedPsychometricsReproducibility of ResultsSurveys and QuestionnairesACEAdverse life experiencesEQ-HWBFamiliesPsychometricQuality of life

Identifiers

PMID38578477
PMCPMC11743351

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.