ArticleBMJ open quality2024
Patient and healthcare professional perspectives on the Practical Guide to Implementing PROMs in Gender-Affirming Care (PG-PROM-GAC): analysis of open-ended responses from patients and healthcare professionals.
Article in BMJ open quality, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 2 of them syntheses that pooled it.
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Who cites it
9 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patient-reported outcomes, provider-reported outcomes, and physiologic parameters after gender-affirming hormone treatment in Canada: a systematic review.Hormones (Athens, Greece) · 2025Pooled it
- Pooled it
- Gender Identity Milestones and Hormone Utilization in Transgender Men and Women in China.JAMA network open · 2026Article
- Survey on voice feminization surgery: current practices, assessment techniques, and postoperative outcomes.European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery · 2025Article
- Transforming Patient-Reported Outcome Measurement With Digital Health Technology.Journal of evaluation in clinical practice · 2025Article
- Prioritizing Equity: A Call to Implement Freely Available and Accessible Patient-Reported Outcome Measures in Paediatric Gender-Affirming Care.Paediatrics & child health · 2025Article
- Gender-affirming care education in pharmacy: a scoping review protocol of practices in Canada and the USA.BMJ open · 2025Article
- Practical guide to implementing patient-reported outcome measures in gender-affirming care: evaluating acceptability, appropriateness and feasibility.BMJ open quality · 2024Article
- Implementing strategies to improve uptake of patient-reported outcome measures (PROMs) in gender-affirming care: a mixed-methods implementation study.BMJ open quality · 2024Article
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Authors and funding
7 authors.
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Abstract
importanceSeveral international calls have been made for evidence-based patient-reported outcome measure (PROM) implementation for gender-affirming care. The Practical Guide to Implementing PROMs in Gender-Affirming Care (PG-PROM-GAC) is a resource which can help guide PROM implementation efforts, developed using a three-phase participatory research approach with transgender and gender-diverse (TGD) patients and gender-affirming healthcare professionals. However, thoughts and perspectives from TGD patients and gender-affirming healthcare professionals on the PG-PROM-GAC need to be investigated.
objectiveInvestigate patient and healthcare professional perspectives on the PG-PROM-GAC through analysis of open-ended survey results.
designQualitative study analysing open-ended responses from TGD patients and gender-affirming healthcare professionals.
settingParticipants were recruited from a UK National Health System (NHS) gender clinic.
participantsPatients receiving care at an NHS gender clinic and healthcare professionals working at an NHS gender clinic were eligible for participation. Eligible participants were invited to participate in this study via email.
interventionParticipants were sent an open-ended survey to collect responses on the PG-PROM-GAC. MAIN OUTCOMES AND MEASURES: Data were thematically analysed by two independent researchers and interpreted following guidance from established methods in implementation science.
resultsA total of 64 TGD patients and 9 gender-affirming healthcare professionals responded to the open-ended survey (mean (SD) age: 35 (16) and 48 (8), respectively). Four main themes emerged from the data: overall opinions and support for the PG-PROM-GAC, presentation of the PG-PROM-GAC, impact of gender clinic resources on PROM implementation and impact of PROM selection on implementation. Data were used to iterate the PG-PROM-GAC in response to participant feedback. CONCLUSIONS AND RELEVANCE: The PG-PROM-GAC is an acceptable and feasible resource that can be used by clinicians, researchers and policymakers to guide PROM implementation for gender-affirming care settings, helping to align gender-affirming care with patient needs.
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