Evidence map›Paper›PMID 38561727›Full record

ArticleBMC palliative care2024

Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study.

Berivan Yildiz, Agnes van der Heide, Misa Bakan, Grethe Skorpen Iversen, Dagny Faksvåg Haugen, Tamsin McGlinchey, Ruthmarijke Smeding, John Ellershaw, Claudia Fischer, Judit Simon and 4 more

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04678310 (iLIVE Project), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.5field-weighted citation impact, top 34% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04678310 completednot on this map

iLIVE Project: Live Well, Die Well. A Nested Volunteer Study

TypeobservationalSponsorUniversity of LiverpoolRan2021 to 2023Enrolled105ConditionsTerminal IllnessArmsSupport from the hospital palliative and end of life care volunteer service (developed for this study).
3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 15 institutions in 13 countries.

Berivan YildizDepartment of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands. b.yildiz@erasmusmc.nl.
Agnes van der HeideDepartment of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands.
Misa BakanResearch Department, University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia.
Grethe Skorpen IversenRegional Centre of Excellence for Palliative Care, Western Norway, Haukeland University Hospital, Bergen, Norway.
Dagny Faksvåg HaugenRegional Centre of Excellence for Palliative Care, Western Norway, Haukeland University Hospital, Bergen, Norway.
Tamsin McGlincheyPalliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK.
Ruthmarijke SmedingPalliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK.
John EllershawPalliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK.
Claudia FischerDepartment of Health Economics, Center for Public Health, Medical University of Vienna, Vienna, Austria.
Judit SimonDepartment of Health Economics, Center for Public Health, Medical University of Vienna, Vienna, Austria.
Eva Vibora-MartinCUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Malaga, Spain.
Inmaculada Ruiz-TorrerasCUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Malaga, Spain.
Anne GoossensenInformal Care and Care Ethics, University of Humanistic Studies, Utrecht, The Netherlands.
iLIVE consortium
University of Cologne · DEErasmus MC · NLUniversity of Bern · CHLund University · SEMedical University of Vienna · ATHaukeland University Hospital · NOUniversidad de Buenos Aires · ARUniversity of Liverpool · GBErasmus MC Cancer Institute · NLInstituto de Investigación Biomédica de Málaga · ESAmsterdam University Medical Centers · NLPallium India · INSt Vincent's Hospital Melbourne · AUUniversity Clinic of Pulmonary and Allergic Diseases Golnik · SIUniversity of Humanistic Studies · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEnd-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals.

methodsVolunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital.

resultsBarriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK).

conclusionEstablishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained.

trial registrationNCT04678310. Registered 21/12/2020.

Indexed as

PandemicsTerminal CareHospitalsHumansPalliative CareQualitative ResearchVolunteersEnd of life careHospital volunteerImplementationInpatientVolunteering

Identifiers

PMID38561727
PMCPMC10985898
OpenAlexW4393443574

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.