ArticleHeliyon2024
Impact of family-centered care in families with children with intellectual disability: A systematic review.
Article in Heliyon, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Views and Experiences of Families and Registered Nurses Regarding Hospital Care and Support of Children With Intellectual Disabilities: A Systematic Review.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Psychological interventions and mental health outcomes among caregivers of children with intellectual disability: a systematic review and meta-analysis.Frontiers in psychology · 2026Pooled it
- Evaluating a family-centered care intervention for reducing post-traumatic stress and aggression among parents of infants with congenital anomalies: a randomized controlled trial.BMC psychiatry · 2026Trial
- Quality of Life Among Saudi Mothers of Children with Autism Spectrum Disorder: Associations with Caregiver Burden, Psychological Distress, Financial Experiences, and Post-Diagnosis Service Pathway Clarity.Healthcare (Basel, Switzerland) · 2026Article
- Family-Centered Care and Family Well-Being in a Community-Based Adapted Sport Program for Children with Neurodevelopmental Disabilities: A Cross-Sectional Exploratory Study.Children (Basel, Switzerland) · 2026Article
- Family-centered physiotherapy services for children with cerebral palsy in Syria: an observational study.BMC pediatrics · 2026Observational
- Family and health professional perspectives of the CHD LIFE cardiac developmental long-term care pathway: a qualitative evaluation.Pediatric research · 2026Article
- The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective.Health science reports · 2026Article
- Mapping Existing Informal Home Caregiver Support Guidelines for Palliative Care: A Scoping Review.Rwanda journal of medicine and health sciences · 2026Review
- The effect of a family-centered care program on the psychological outcomes of births with congenital malformations: A study protocol.Journal of education and health promotion · 2026Article
- Development and Preliminary Validation of the Parental Education in Physiotherapy Scale for Use in Spain: A Pilot Study.European journal of investigation in health, psychology and education · 2025Article
- Parent Use and Perceptions of Problem-Solving Education in the Context of Parent-Implemented Intervention for Toddlers With Early Signs of Autism.Journal of autism and developmental disorders · 2025Article
- Perceptions of Parental Needs in General Pediatric Inpatient Units: A Comparative Study Between Nurses and Parents in Saudi Arabia.Children (Basel, Switzerland) · 2025Article
- Family Self-Care in the Context of Intellectual Disabilities: Insights from a Qualitative Study in Portugal.Healthcare (Basel, Switzerland) · 2025Article
- Family-Centred Care among Caregivers of Children with Disabilities in Selected Paediatric Rehabilitation Centres in Rwanda: A Cross-Sectional Study.Rwanda journal of medicine and health sciences · 2025Article
- Family Self-Care Pattern in Families with Children with Intellectual Disabilities: A Pilot Study.Healthcare (Basel, Switzerland) · 2025Article
- Improving the Prioritization of Heart Transplantation Candidates for Optimal Clinical Outcomes: A Narrative Review.Current cardiology reports · 2025Review
- Service access for youth with neurodevelopmental disabilities transitioning to adulthood: service providers' and decision-makers' perspectives on barriers, facilitators and policy recommendations.Frontiers in public health · 2025Article
- The Association and Mediators Between Sleep Problems in Autistic Children and Parenting Stress.Psychology research and behavior management · 2025Article
- 'I can't take my eyes off her' problems and difficulties experienced by mothers caring for their intellectually disabled children at home: a qualitative research.International journal of developmental disabilities · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Family-Centered Care (FCC) is an approach to healthcare planning, delivery and evaluation, based on beneficial partnerships between health professionals, patients and families. FCC may be particularly relevant for families with children with intellectual disability (ID), given their needs of continuum care. Objective: To identify which components of the FCC are practiced and which health outcomes are considered effective in families with children with ID. Method: A systematic review guided by the PRISMA STATEMENT 2020 approach and the STROBE reporting guidelines was performed on specific databases through the EBSCOhost Web platform: MEDLINE Results: Ten studies met the eligibility criteria and were synthetized. The results revealed nine components, reflecting the way FCC was developed: shared decision-making; family education; respect for culture; family engagement; recognition of the family's needs, characteristics and interests; specialized care support; social and emotional support; family functionality; and family seen as a unit. The health outcomes demonstrate effective gains in improving children's health through family satisfaction with health services. Also achieved psychological and social benefits, with improved family well-being and quality of life, favoring family empowerment. Conclusions: The evidence suggests that FCC components involves an effective partnership between the family and health professionals as the main key in developing care plans, as well as the experience that the family unit brings to the delivery of care. FCC approach include all family members as decision-makers, providing emotional, physical and instrumental levels of support. Health outcomes emerged in three strands; for children with ID, families and health services.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.