ArticleJournal of the American Geriatrics Society2024
Emergency department communication with diverse caregivers and persons living with dementia: A qualitative study.
Article in Journal of the American Geriatrics Society, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 18 citations in OpenAlex.
- A Systematic Review Evaluating Pain Assessment Strategies for Patients With Dementia in the Emergency Department: The Geriatric ED Guidelines 2.0.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026Pooled it
- Inclusion of Informal Carers in the Care of Older Adults in the Emergency Department: An Integrative Review.Journal of clinical nursing · 2025Pooled it
- Emergency Departments Leading the Transformation of Alzheimer's and Dementia Care: Emergency Care Redesign.Journal of the American Geriatrics Society · 2026Article
- Disposition at Equipoise: A Qualitative Study of Emergency Physicians' Decision-Making About Hospitalizing People With Dementia.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026Article
- Development and validation of the Caregiver-reported Outcome Measure for Emergency care Transitions (COMET) tool.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2026Article
- Communicating Across Languages: Experiences of Spanish-Speaking People With Dementia and Care Partners in the Emergency Department.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026Article
- What Matters Most to People Living With Dementia and Their Care Partners During Emergency Department Visits.Journal of the American Geriatrics Society · 2026Article
- Cognitive Interviews With Emergency Physicians to Understand Disposition Decisions With People With Dementia With Borderline Cases.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- A Qualitative Study of Health Priorities of People With Dementia and Care Partners in Emergency Department and Hospital Care in a Public Safety-Net Setting.Journal of the American Geriatrics Society · 2025Article
- Development and Pilot Testing of an Artificial Intelligence and Care Coach Intervention for Cognitively Impaired Older Adults.Journal of the American Geriatrics Society · 2025Article
- Care Decisions in the Hospital: Challenges for Family Members of Hospitalized Persons With Dementia.Journal of pain and symptom management · 2025Article
- Emergency Nurses' Perspectives on Adopting Geriatric Screenings for Cognitive Impairment: A Qualitative Study.Journal of emergency nursing · 2025Article
- Emergency Care for Persons Living with Dementia.Emergency medicine clinics of North America · 2025Review
- Novel algorithms & blood-based biomarkers: Dementia detection and care transitions for persons living with dementia in the emergency department.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Review
- Older Adults' Experiences of Emergency Department Admission Decisions: A Qualitative Study in a Public Safety Net Hospital.Journal of general internal medicine · 2025Article
- Article
Corrections and comments
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Authors and funding
9 authors at 5 institutions in 1 country.
Funding
Abstract
backgroundResearch to date has detailed numerous challenges in emergency department (ED) communication with persons living with dementia (PLWD) and their caregivers. However, little is known about communication experiences of individuals belonging to minoritized racial and ethnic groups, who are disproportionately impacted by dementia and less likely to be included in dementia research.
methodsWe conducted semi-structured interviews with 29 caregivers of PLWD from two urban academic hospital EDs with distinct patient populations. The first site is an ED in the Northeast serving a majority White, English-speaking, and insured population. The second site is an ED in the South serving a majority Black and/or Hispanic, Spanish-speaking, and underinsured population. Interviews lasted an average of 25 min and were digitally recorded and transcribed. We used an inductive approach to analyze interview transcripts for dominant themes and compared themes between sites.
resultsOur sample included caregivers of diverse racial and ethnic backgrounds. Caregivers cared for PLWD who spoke English, Spanish, Arabic, Chinese, and Vietnamese. We identified three themes. First, caregiver advocacy was central to experiences of ED communication, particularly when PLWD primarily spoke a non-English language. Second, routine care plans did not address what mattered most to participants and PLWD. Participants felt that care arose from protocols and did not address what mattered most to them. Third, White English-speaking caregivers in Site 1 more commonly expected ED staff to engage them in care decision-making than Black, Hispanic, Asian, and Middle Eastern caregivers in Site 2.
conclusionLanguage barriers amplify the higher intensity care needed by PLWD in the ED. Strategies should be developed for communicating with PLWD and caregivers about what matters most in their ED care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.