ArticleJournal of child health care : for professionals working with children in the hospital and community2025
Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study.
Article in Journal of child health care : for professionals working with children in the hospital and community, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07680348 (Relational Regulation), which is not on this map. Cited by 10 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Relational Regulation: A Relational Approach to Music Therapy-based Procedural Support for Paediatric Patients and Families Facing Repeated Invasive Procedures
Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Understanding the effectiveness and design of parent-oriented mobile health interventions: a systematic review and narrative synthesis.BMC pediatrics · 2025Pooled it
- Silence around SUDEP and its impact on caregivers of individuals with developmental and epileptic encephalopathies: An international survey.Epilepsia open · 2026Article
- Exploring parental mind-mindedness in the context of atypical and at-risk development: A scoping review of parental well-being, parenting, and child characteristics.Infant mental health journal · 2026Article
- Coping strategies of parents of children with chronic diseases and their relationship with caregiving burden.BMC pediatrics · 2026Article
- An evaluation of the impact of a cancer support specialist service on families of children with cancer and the multidisciplinary team in a children's health service in Ireland.Journal of child health care : for professionals working with children in the hospital and community · 2026Article
- Sense of coherence in family caregivers of children with chronic diseases: a narrative review.Frontiers in pediatrics · 2026Review
- Effect of physician communication on caregivers' anxiety in pediatric trauma patients: a quasi-experimental study.Frontiers in pediatrics · 2026Article
- "Just realising that I wasn't alone… was profound": a mixed-methods evaluation of a pilot peer-to-peer wellbeing program for carers of children with rare epilepsies.Orphanet journal of rare diseases · 2025Article
- Care needs of children with chronic illnesses from the perspectives of children, parents, and nurses: a Q methodology approach.BMC nursing · 2025Article
- Quality of life in caregivers of a child with a developmental and epileptic encephalopathy.Developmental medicine and child neurology · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Parents of a child with a chronic illness can experience greater distress than the average population, yet little is understood about differences between illness groups. This cross-sectional survey study aimed to compare parents' psychological distress and perceived wellbeing across five chronic illnesses. Parents from one Australian pediatric hospital completed the Kessler Psychological Distress Scale and seven purpose-designed items about their wellbeing. Data from 106 parents (cancer = 48, cystic fibrosis [CF] = 27, kidney disease = 12, gastrointestinal condition/disorder = 9, developmental and epileptic encephalopathy [DEE] = 10) was analysed using bivariate Pearson's Correlation and linear mixed-effects models. Parents' distress scores differed between groups (
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.