ArticleThe Journal of privacy and confidentiality2023
BEYOND LEGAL FRAMEWORKS AND SECURITY CONTROLS FOR ACCESSING CONFIDENTIAL SURVEY DATA IN THE UNITED STATES: ENGAGING DATA USERS IN DATA PROTECTION.
Article in The Journal of privacy and confidentiality, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Authors and funding
3 authors.
Funding
Abstract
With growing demand for data reuse and open data within the scientific ecosystem, protecting the confidentialy of survey data and privacy of data subjects is increasingly important. Doing so requires more than legal procedures and technological controls; it requires social and behavioral intervention. In this research note, we delineate the disclosure risks of various types of survey data (e.g., longitudinal data, social network data, sensitive information, biomarkers, and geographic data), the current motivation for data reuse, and challenges to data protection. Despite rigorous efforts to protect data, there are still threats to protection of confidentiality in microdata. Unintentional data breaches, protocol violations, and data misuse are observed even in well-established restricted data access systems, indicating that the systems may all rely heavily on trust. Creating and maintaining that trust is critical to secure data access. We suggest four ways of building trust;
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Registered trials
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