ArticleHealthcare (Basel, Switzerland)2024
Assessment of the Clinical and Functional Health Status of Patients with Amyotrophic Lateral Sclerosis during the COVID-19 Pandemic in Brazil Using Telemedicine.
Ozana Brito, Guilherme Fregonezi, Karen Pondofe, Rayane Grayce da Silva Vieira, Tatiana Ribeiro, Mário Emílio Dourado Júnior, Emanuela Coriolano Fidelix, Danilo Nagem, Ricardo Valentim, Antonio Sarmento and 1 more
Open access · goldAbstract readCase Reports
In one paragraphArticle in Healthcare (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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What it found
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2 · The registryThe trial behind it
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4 · The recordCorrections and comments
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5 · Who and what moneyAuthors and funding
11 authors at 1 institution in 1 country.
Ozana BritoPneumoCardioVascular Lab/HUOL, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.
Guilherme FregoneziPneumoCardioVascular Lab/HUOL, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.
Karen PondofePneumoCardioVascular Lab/HUOL, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.ORCID 0000-0003-2105-1096 Rayane Grayce da Silva VieiraPneumoCardioVascular Lab/HUOL, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.
Tatiana RibeiroLaboratory of Technological Innovation in Health, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.ORCID 0000-0002-9611-1076 Mário Emílio Dourado JúniorDepartment of Integrated Medicine, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.
Emanuela Coriolano FidelixDepartment of Neurology, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59056-000, Brazil.
Danilo NagemLaboratory of Technological Innovation in Health, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.
Ricardo ValentimLaboratory of Technological Innovation in Health, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.ORCID 0000-0002-9216-8593 Antonio SarmentoPneumoCardioVascular Lab/HUOL, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.ORCID 0000-0001-6391-5652 Vanessa ResquetiPneumoCardioVascular Lab/HUOL, Onofre Lopes University Hospital, Brazilian Hospital Services Company (EBSERH), Federal University of Rio Grande do Norte, Natal 59010-090, Brazil.
Universidade Federal do Rio Grande do Norte · BR
Funding
Coordenação de Aperfeicoamento de Pessoal de Nível Superior 2021OB805920National Council for Scientific and Technological Development 305960/2021-0National Council for Scientific and Technological Development 316937/2021-5
6 · The paper itselfAbstract
This study aimed to monitor the clinical and functional progression of patients with amyotrophic lateral sclerosis (ALS) and adjust ventilatory support during the COVID-19 pandemic in Brazil using telemedicine. This longitudinal case series included five evaluations from January 2019 to June 2021. The first and second assessments were performed in person and consisted of pulmonary function, respiratory muscle strength, functionality (ALS Functional Rating Scale-Revised [ALSFRS-R]) and disease staging (King's College criteria). The use of non-invasive ventilation (NIV), ALSFRS-R, and disease staging were assessed in the third, fourth, and fifth assessments during the COVID-19 pandemic, using telemedicine. The rate of functional decline was calculated by the difference in the total score of ALSFRS-R between evaluations. A cutoff of 0.77 in the ALSFRS-R was used to characterize the speed of functional decline. Eleven patients (mean age of 51 years, eight males) were assessed. The total score of the ALSFRS-R (
Indexed as
amyotrophic lateral sclerosisCOVID-19functionalitynon-invasive ventilationtelemedicine
Identifiers
PMID38540591
PMCPMC10970365
OpenAlexW4392644338
What OpenQuestion holds
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LicenceCC BY
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