Evidence map›Paper›PMID 38539213›Full record

ArticleBMC medical ethics2024

How patients experience respect in healthcare: findings from a qualitative study among multicultural women living with HIV.

Sofia B Fernandez, Alya Ahmad, Mary Catherine Beach, Melissa K Ward, Michele Jean-Gilles, Gladys Ibañez, Robert Ladner, Mary Jo Trepka

Abstract read
In one paragraph

Article in BMC medical ethics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Positive Influences: How Provider Actions Affect HIV Care Engagement for Black Women in the Southwest U.S.International journal of environmental research and public health · 2025
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Sofia B FernandezSchool of Social Work, Robert Stempel College of Public Health and Social Work, Florida International University, 11200 SW 8th St, Miami, FL, 33199, USA. sofernan@fiu.edu.
Alya AhmadDepartment of Medicine, Division of General Internal Medicine, Johns Hopkins University, 2024 East Monument Street, Baltimore, MD, 21205, USA.
Mary Catherine BeachDepartment of Medicine, Division of General Internal Medicine, Johns Hopkins University, 2024 East Monument Street, Baltimore, MD, 21205, USA.
Melissa K WardResearch Center in Minority Institutions, Florida International University, 11200 SW 8th St, Miami, FL, 33199, USA.
Michele Jean-GillesDepartment of Health Promotion and Disease Prevention, Robert Stempel College of Public Health and Social Work, Florida International University, 11200 SW 8th St, Miami, FL, 33199, USA.
Gladys IbañezDepartment of Epidemiology, Robert Stempel College of Public Health and Social Work, Florida International University, 11200 SW 8th St, Miami, FL, 33199, USA.
Robert LadnerBehavioral Science Research Corporation, 2121 Ponce de Leon Boulevard, Coral Gables, FL, 33134, USA.
Mary Jo TrepkaResearch Center in Minority Institutions, Florida International University, 11200 SW 8th St, Miami, FL, 33199, USA.

Funding

The FIU Research Center in a Minority Institution (FIU-RCMI)U54MD012393 · NIMHD · FLORIDA INTERNATIONAL UNIVERSITY · PI Shanna L Burke · 2017 to 2026
$32.1M
Women-centered HIV care practices that facilitate HIV care retention and viral suppression in the presence of adverse sociocultural factorsR01MD013563 · NIMHD · FLORIDA INTERNATIONAL UNIVERSITY · PI TREPKA, MARY JO · 2018 to 2022
$2.4M
NIMHD NIH HHS R01 MD013563NIMHD NIH HHS U54 MD012393
6 · The paper itself

Abstract

backgroundRespect is essential to providing high quality healthcare, particularly for groups that are historically marginalized and stigmatized. While ethical principles taught to health professionals focus on patient autonomy as the object of respect for persons, limited studies explore patients' views of respect. The purpose of this study was to explore the perspectives of a multiculturally diverse group of low-income women living with HIV (WLH) regarding their experience of respect from their medical physicians.

methodsWe analyzed 57 semi-structured interviews conducted at HIV case management sites in South Florida as part of a larger qualitative study that explored practices facilitating retention and adherence in care. Women were eligible to participate if they identified as African American (n = 28), Hispanic/Latina (n = 22), or Haitian (n = 7). They were asked to describe instances when they were treated with respect by their medical physicians. Interviews were conducted by a fluent research interviewer in either English, Spanish, or Haitian Creole, depending on participant's language preference. Transcripts were translated, back-translated and reviewed in entirety for any statements or comments about "respect." After independent coding by 3 investigators, we used a consensual thematic analysis approach to determine themes.

resultsResults from this study grouped into two overarching classifications: respect manifested in physicians' orientation towards the patient (i.e., interpersonal behaviors in interactions) and respect in medical professionalism (i.e., clinic procedures and practices). Four main themes emerged regarding respect in provider's orientation towards the patient: being treated as a person, treated as an equal, treated without blame or prejudice, and treated with concern/emotional support. Two main themes emerged regarding respect as evidenced in medical professionalism: physician availability and considerations of privacy.

conclusionsFindings suggest a more robust conception of what 'respect for persons' entails in medical ethics for a diverse group of low-income women living with HIV. Findings have implications for broadening areas of focus of future bioethics education, training, and research to include components of interpersonal relationship development, communication, and clinic procedures. We suggest these areas of training may increase respectful medical care experiences and potentially serve to influence persistent and known social and structural determinants of health through provider interactions and health care delivery.

Indexed as

HIV InfectionsPhysiciansDelivery of Health CareFemaleHaitiHumansQualitative ResearchBioethicsHIV care and treatmentPatient-centered careRespect

Identifiers

PMID38539213
PMCPMC10967177

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.