Evidence map›Paper›PMID 38535713›Full record

ArticleNursing reports (Pavia, Italy)2024

Methodological Proposal for the Adaptation of the Living with Long-Term Conditions Scale to the Family Caregiver.

Patricia Marín-Maicas, Mari Carmen Portillo, Silvia Corchón, Leire Ambrosio

Registry-linked trialAbstract read
In one paragraph

Article in Nursing reports (Pavia, Italy), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07639645 (Multimodal Intervention to Reduce Unwanted Loneliness and Improve the Living With Process Among Family Caregivers of People With Alzheimer's Disease), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07639645 nanot yet recruitingnot on this mapstarted 2026, after this paper: background citation

Multimodal Intervention to Reduce Unwanted Loneliness and Improve the Living With Process Among Family Caregivers of People With Alzheimer's Disease

TypeinterventionalSponsorUniversity of ValenciaRan2026 to 2028Enrolled50ConditionsAlzheimer Disease (AD), Unwanted Loneliness, Family Caregivers, Living With ProcessArmsMultimodal intervention to Reduce Unwanted Loneliness in Family Caregivers of People With Alzheimer
3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Patricia Marín-MaicasFaculty of Health Science, Valencian International University, 46002 Valencia, Spain.ORCID 0000-0001-9763-9502
Mari Carmen PortilloNIHR ARC Wessex, School of Health Sciences, University of Southampton, Southampton SO17 1BJ, UK.
Silvia CorchónFaculty of Nursing and Chiropody, University of Valencia, 46010 Valencia, Spain.ORCID 0000-0001-6673-5681
Leire AmbrosioNIHR ARC Wessex, School of Health Sciences, University of Southampton, Southampton SO17 1BJ, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

(1) Background: Living with long-term conditions affects both patients and family caregivers. To obtain a more complete overview of this phenomenon, a measurement instrument is needed that includes both perspectives. The aim is to adapt a scale to family caregivers of individuals with long-term conditions. (2) Methods: A methodological proposal is presented that illustrates the adaptation of the EC-PC scale to the family caregiver. Three phases are proposed: adaptation of the items, panel of experts, and pre-test. (3) Results: In the adaptation phase, the items from the original EC-PC were modified to adapt them to the family caregiver, and new items were added associated with the differences in living with LTC from the perspective of family caregivers. In the panel of experts phase, a universal agreement was reached related to the clarity, relevance, and essentiality of the items included. In the pre-test phase, the content of the scale was verified quantitatively and qualitatively. (4) Conclusions: The content of the items of version 5 of the EC-PC-Family showed a high index of inter-judge agreement. When a phenomenon affects both patients and their environment, such as living with LTC, it is necessary to include both perspectives in the measurement tools.

Indexed as

family caregiverliving with long-term conditionsmethodological approachtool

Identifiers

PMID38535713
PMCPMC10974583

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