Evidence map›Paper›PMID 38532418›Full record

ArticleBMC public health2024

Cross-country variations in the caregiver role: evidence from the ENTWINE-iCohort study.

Mikołaj Zarzycki, Noa Vilchinsky, Eva Bei, Giulia Ferraris, Diane Seddon, Val Morrison

Open access · goldAbstract read
In one paragraph

Article in BMC public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
14.7field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it, 13 citations in OpenAlex.

  1. Pooled it
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  12. Societal Costs of Dementia: 204 Countries, 2000-2019.Journal of Alzheimer's disease : JAD · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 4 countries.

Mikołaj ZarzyckiDepartment of Psychology, Liverpool Hope University, Liverpool, United Kingdom. zarzycm@hope.ac.uk.ORCID 0000-0002-8357-563X
Noa VilchinskyDepartment of Psychology, Faculty of Social Sciences, Bar-Ilan University, Ramat Gan, Israel.ORCID 0000-0003-4965-4745
Eva BeiDepartment of Psychology, Faculty of Social Sciences, Bar-Ilan University, Ramat Gan, Israel.ORCID 0000-0002-3093-0829
Giulia FerrarisDepartment of Health Psychology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.ORCID 0000-0003-0957-0918
Diane SeddonSchool of Medical and Health Sciences, Bangor University, Bangor, Wales, United Kingdom.ORCID 0000-0002-0660-4839
Val MorrisonSchool of Psychology and Sports Sciences, Bangor University, Bangor, Wales, United Kingdom.ORCID 0000-0002-4308-8976
Bangor University · GBBar-Ilan University · ILUniversity Medical Center Groningen · NL

Funding

Horizon 2020 Framework Programme 814072
6 · The paper itself

Abstract

backgroundGlobally, economically developed countries face similar ageing demographics and the challenge of a 'care gap', yet they vary due to different care and formal support systems, and different cultural and societal norms around illness and care. The aim of this exploratory study was to examine cross-country variations in caregiver motivations, willingness, values, meaning in life, illness beliefs, and experiences of wellbeing, gain, health-related quality of life, burden and depression, across 6 European countries and Israel. Cross-country differences in the above-mentioned informal caregiver experiences are rarely described.

methodsAn online survey (ENTWINE-iCohort) was conducted using validated measures wherever possible. This paper utilises data from 879 caregivers and seven countries (Greece, Italy, the Netherlands, Poland, Sweden, the UK, and Israel).

resultsNo consistent finding supporting the concurrent relationship between caregiver support policies/country culture and caregiver motivations/willingness was found. Caregivers in countries typically characterised by individualist cultures reported lower familism, higher self-enhancement values, and greater perceived illness threat compared to more collectivist countries. Search for meaning was higher in poorer countries than in wealthier countries. Higher negative caregiver experiences (e.g., burden) and lower positive experiences (e.g., wellbeing) were generally observed in countries with underdeveloped caregiver support as compared to countries with more developed formal support systems.

conclusionsCross-country variations can be explained to varying degrees by national policies around care (or their absence) and country cultural contexts. The results emphasise the importance of formal support services for achieving positive caregiver experiences, and help inform the development of policies and measures to support caregivers in Europe and Israel.

Indexed as

CaregiversQuality of LifeEuropeGreeceHumansNetherlandsCaregiver outcomesCaregiver valuesCross-country analysisCultureIllness beliefsInformal caregivingMeaning in lifeMotivations and willingness to careSociety

Identifiers

PMID38532418
PMCPMC10967140
OpenAlexW4393202550

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.