Evidence map›Paper›PMID 38528573›Full record

ArticleResearch involvement and engagement2024

Determining the destination: a co-designed chronic advanced cancer rehabilitation conceptual framework for engagement of individuals with lived experience in rehabilitation research.

Naomi Dolgoy, Stephanie Bernard, Fleur Huang, Amy Driga, Debra Hall-Lavoie, Adam Brown, Edith Pituskin, Alysa Fairchild, Margaret L McNeely

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Article in Research involvement and engagement, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Naomi DolgoyDepartment of Occupational Therapy, University of Alberta, Edmonton, AB, Canada. dolgoy@ualberta.ca.
Stephanie BernardÉcole des sciences de la réadaptation, Faculté de Médecine, Université Laval, Quebec City, Canada.
Fleur HuangDepartment of Radiation Oncology, Cross Cancer Institute, Edmonton, AB, Canada.
Amy DrigaAlberta Health Services, Edmonton, AB, Canada.
Debra Hall-LavoieIndividuals With Lived Experience, Edmonton, AB, Canada.
Adam BrownIndividuals With Lived Experience, Edmonton, AB, Canada.
Edith PituskinFaculty of Nursing, Department of Oncology, Cross Cancer Institute and University of Alberta, Edmonton, AB, Canada.
Alysa FairchildFaculty of Medicine and Dentistry, Department of Oncology, University of Alberta, Edmonton, AB, Canada.
Margaret L McNeelyDepartment of Physical Therapy, Department of Oncology, Cross Cancer Institute and University of Alberta, Edmonton, AB, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIndividuals living with chronic advanced cancer (CAC) often face distinct physical, functional, and cognitive issues. Their rehabilitation needs are not yet routinely met, warranting further CAC-specific rehabilitation-based research. Given the complexity of functional and symptom presentations, engagement of individuals living with CAC as partners in the research process is encouraged to better understand the lived perspective. Formal engagement requires both structured approaches and iterative processes. The aim was to co-design a conceptual framework to develop and integrate engagement strategies into rehabilitation research focused on CAC populations.

methodsA multidisciplinary team of authors, including two individuals with lived experience, conducted an implementation-focused descriptive study to inform future research design, including: interviews and follow-up, review of current models and approaches, and development of a co-designed conceptual framework for engaging individuals with lived experience into CAC-specific rehabilitation research.

resultsEmergent themes include shared understanding, transparent appreciation, iterative processes and unique partnership needs. A definition, guiding principles and tools for engagement were identified. In consultation with individuals with lived experience, and application of the emergent themes in context, a conceptual framework to guide the engagement process was developed.

conclusionA novel conceptual framework for engaging individuals with lived experience with CAC as partners in rehabilitation research is proposed to facilitate implementation-focused team-based approaches for this population.

Indexed as

Advanced cancerChronic cancerMetastatic cancerOccupational therapyOncologyPatient-engagementPatient-orientedPhysiotherapyRehabilitationSpeech therapy

Identifiers

PMID38528573
PMCPMC10964664

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.