Evidence map›Paper›PMID 38526527›Full record

ArticleJMIR cancer2024

Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study.

Clarissa E Schilstra, Sarah J Ellis, Jennifer Cohen, Alana Gall, Abbey Diaz, Kristina Clarke, Gadiel Dumlao, Jennifer Chard, Therese M Cumming, Esther Davis and 11 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Clarissa E SchilstraBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Faculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Randwick, Australia.ORCID https://orcid.org/0000-0002-4896-6037
Sarah J EllisBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Faculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Randwick, Australia.ORCID https://orcid.org/0000-0003-3074-5831
Jennifer CohenFaculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Kensington, Australia.ORCID https://orcid.org/0000-0002-7798-1113
Alana GallNational Centre for Naturopathic Medicine, Faculty of Health, Southern Cross University, Lismore, Australia.ORCID https://orcid.org/0000-0002-2503-2696
Abbey DiazSchool of Public Health, Faculty of Medicine, University of Queensland, Brisbane, Australia.ORCID https://orcid.org/0000-0002-8637-311X
Kristina ClarkeCanteen Australia, Newtown, Australia.ORCID https://orcid.org/0000-0003-0317-560X
Gadiel DumlaoBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Faculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Randwick, Australia.
Jennifer ChardWestern Sydney Youth Cancer Service, Crown Princess Mary Cancer Centre, Westmead Hospital, Westmead, Australia.
Therese M CummingFaculty of Arts, Design and Architecture, University of New South Wales Sydney, Kensington, Australia.ORCID https://orcid.org/0000-0003-4113-6046
Esther DavisCanteen Australia, Newtown, Australia.ORCID https://orcid.org/0000-0002-9653-962X
Haryana DhillonSchool of Psychology, Faculty of Science, University of Sydney, Camperdown, Australia.ORCID https://orcid.org/0000-0003-4039-5169
Mary Anne BurnsSchool of Psychology, Faculty of Science, University of Sydney, Camperdown, Australia.ORCID https://orcid.org/0000-0001-8498-1237
Kimberley DockingFaculty of Medicine and Health, University of Sydney, Camperdown, Australia.ORCID https://orcid.org/0000-0001-9996-7235
Eng-Siew KohSouth West Sydney Clinical School, Faculty of Medicine and Health, University of New South Wales Sydney, Liverpool, Australia.ORCID https://orcid.org/0000-0002-1664-2513
Josephine O'ReillyCancer survivor representative, New South Wales, Australia.
Ursula M Sansom-DalyBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Faculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Randwick, Australia.ORCID https://orcid.org/0000-0003-4200-8900
Joanne ShawSchool of Psychology, Faculty of Science, University of Sydney, Camperdown, Australia.ORCID https://orcid.org/0000-0002-9543-7066
Nicole SpeersCancer survivor representative, New South Wales, Australia.
Natalie TaylorFaculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Kensington, Australia.ORCID https://orcid.org/0000-0002-0280-0883
Anthea WarneFaculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Kensington, Australia.ORCID https://orcid.org/0009-0005-5285-7078
Joanna E FardellBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Faculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Randwick, Australia.ORCID https://orcid.org/0000-0001-7334-3475

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAdolescents and young adults (AYAs) diagnosed with cancer experience physical, cognitive, and psychosocial effects from cancer treatment that can negatively affect their ability to remain engaged in education or work through cancer treatment and in the long term. Disengagement from education or work can have lasting implications for AYAs' financial independence, psychosocial well-being, and quality of life. Australian AYAs with cancer lack access to adequate specialist support for their education and work needs and report a preference for web-based support that they can access from anywhere, in their own time. However, it remains unclear what web-based resources exist that are tailored to support AYAs with cancer in reaching their educational or work goals.

objectiveThis study aimed to determine what web-based resources exist for Australian AYAs with cancer to (1) support return to education or work and (2) identify the degree to which existing resources are age-specific, cancer-specific, culturally inclusive, and evidence-based; are co-designed with AYAs; use age-appropriate language; and are easy to find.

methodsWe conducted an environmental scan by searching Google with English search terms in August 2022 to identify information resources about employment and education for AYAs ever diagnosed with cancer. Data extraction was conducted in Microsoft Excel, and the following were assessed: understandability and actionability (using the Patient Education and Materials Tool), readability (using the Sydney Health Literacy Laboratory Health Literacy Editor), and whether the resource was easy to locate, evidence-based, co-designed with AYAs, and culturally inclusive of Aboriginal and Torres Strait Islander peoples. The latter was assessed using 7 criteria previously developed by members of the research team.

resultsWe identified 24 web-based resources, comprising 22 written text resources and 12 video resources. Most resources (21/24, 88%) were published by nongovernmental organizations in Australia, Canada, the United States, and the United Kingdom. A total of 7 resources focused on education, 8 focused on work, and 9 focused on both education and work. The evaluation of resources demonstrated poor understandability and actionability. Resources were rarely evidence-based or co-designed by AYAs, difficult to locate on the internet, and largely not inclusive of Aboriginal and Torres Strait Islander populations.

conclusionsAlthough web-based resources for AYAs with cancer are often available through the websites of hospitals or nongovernmental organizations, this environmental scan suggests they would benefit from more evidence-based and actionable resources that are available in multiple formats (eg, text and audio-visual) and tailored to be age-appropriate and culturally inclusive.

Indexed as

adolescentcancereducationemploymentinformation needsoncologyonline informationquality of liferesourcereturn to workschoolstudysupportive resourcestreatmentyoung adult

Identifiers

PMID38526527
PMCPMC11002739

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.