ArticleHeliyon2024
Caregiver burden among parents of children with type 1 diabetes: A qualitative scoping review.
Article in Heliyon, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06829251 (The Effect of Self-Administered Ear Massage on Stress, Anxiety Levels, and Sleep Quality in Parents of Children Diagnosed With Type 1 Diabetes), which is not on this map. Cited by 20 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Effect of Self-Administered Ear Massage on Stress, Anxiety Levels, and Sleep Quality in Parents of Children Diagnosed With Type 1 Diabetes
Who cites it
20 citing papers in PubMed, 25 citations in OpenAlex.
- A longitudinal study of supportive care needs among Chinese parents of children with acute lymphoblastic leukemia.Asia-Pacific journal of oncology nursing · 2026Article
- Family Impact, Caregiver Burden, Parental Monitoring, and Glycemic Control in Children with Type 1 Diabetes: A Cross-Sectional Study.Children (Basel, Switzerland) · 2026Article
- The Hidden Everyday-Life Burden of Pediatric Type 1 Diabetes: A Household Implementation Framework for Modern Diabetes Technology and Family Care.Current diabetes reports · 2026Review
- Emotion Regulation, Fear of Hypoglycemia, and Diabetes Distress in Parents of Children with Type 1 Diabetes.Behavioral sciences (Basel, Switzerland) · 2026Article
- The effect of tele-interventions on family caregiver burden: a systematic review and meta-analysis.BMC nursing · 2026Article
- Beyond access: Racial and socioeconomic disparities in device use among youth with type 1 diabetes.SSM. Qualitative research in health · 2026Article
- Co-Designing Peer Support Interventions for Adolescents with Type 1 Diabetes and Their Caregivers: A Novel Integration of Community-Based Participatory Research and Human-Centred Design Thinking.Hormone research in paediatrics · 2026Article
- Psychosocial Aspects of Caregiving That Influence Stress and Burden Among Parents of Children With Type 1 Diabetes.Nursing open · 2026Article
- Safety and pharmacokinetics of teplizumab in children less than 8 years of age with stage 2 type 1 diabetes.Diabetologia · 2026Article
- Parental quality of life and its influence on health-related quality of life in children with type 1 diabetes: a cross-sectional dyadic study in a multi-ethnic cohort.BMC endocrine disorders · 2026Article
- Lived experiences of Type 1 diabetes patients visiting a tertiary care hospital of Nepal: A descriptive phenomenological study.PLOS global public health · 2026Article
- Perceptions of the Benefits and Risks of Novel Therapies for Type 1 Diabetes: A Qualitative Study.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2025Article
- Stress and Burden Experienced by Parents of Children with Type 1 Diabetes-A Qualitative Content Analysis Interview Study.Children (Basel, Switzerland) · 2025Article
- [Quality of life and its influencing factors in children and adolescents with type 1 diabetes in Xinjiang].Zhongguo dang dai er ke za zhi = Chinese journal of contemporary pediatrics · 2025Article
- Empowering Caregiver Well-Being With the Adhera Caring Digital Program for Family Caregivers of Children Living With Type 1 Diabetes: Mixed Methods Feasibility Study.JMIR pediatrics and parenting · 2025Article
- The Validation of the Parental Self-Efficacy Scale for Diabetes Management Among Parents of Children Wearing a Continuous Glucose Monitoring Sensor.Biomedicines · 2025Article
- "I Am Forever Changed": A Phenomenological Study of the Existential Experiences of Parents of Children and Young People With Complex Care Needs.Journal of advanced nursing · 2025Article
- Evaluating a Digitally Delivered, Multi-Modal Intervention for Parents of Children with Type 1 Diabetes: A Proof-of-Concept Study.Children (Basel, Switzerland) · 2024Article
- The Social and Financial Burden on Families of Type 1 Diabetic Pediatric Patients in Madinah Region, Saudi Arabia.Cureus · 2024Article
- Quality of Life Among Parents of Jordanian Children and Adolescents With Type 1 Diabetes Mellitus.Sage open pediatricsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objectives: Type one diabetes (T1D) in children places substantial responsibility on parents as caregivers. This study investigated caregiver burden in parents of children with T1D by exploring the financial, physical, social, spiritual, and emotional or psychological problems they experienced. Methods: We conducted a qualitative scoping review of the databases PsycINFO, PROSPERO, OVID Medline, OVID EMBASE, Cochrane Library (CDSR and Central), EBSCO CINAHL, ProQuest Dissertations and Theses Global, and SCOPUS. Of 119 full text articles assessed for eligibility, 18 peer-reviewed qualitative studies were included. Studies were considered relevant if they focused on diabetes management and parental burden or the experience of caregiving for a child with T1D. Results: Using thematic analysis, six interrelated themes were identified: (a) experiencing chronic sorrow, (b) assuming responsibility for glucose highs and lows, (c) managing T1D and nighttime sleep disturbances, (d) making career sacrifices and choices to optimize T1D care, (e) navigating social experiences postdiagnosis, and (f) discovering new sources of support through online platforms. Conclusions: This synthesis highlights an all-encompassing experience involved in caretaking for a child with T1D. Caregiving duties lead to a constant sense of vigilance, especially due to fear of hypoglycemic incidents. Parents commonly experience challenges with balancing work demands with T1D management, which lead to career and financial sacrifices. Their burden of care is exacerbated by a lack of reliable respite care but helped somewhat by online peer support. Future research is needed on the care burden differences between mothers and fathers and how sociodemographic factors affect how caregiver burden is experienced.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.