ArticlePreventive medicine reports2024
Affiliate stigma and caregiver burden in parents of children with epilepsy.
Article in Preventive medicine reports, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 12 citations in OpenAlex.
- Parents care needs with epileptic children: a hybrid model concept analysis.BMC pediatrics · 2025Pooled it
- Caregiver Burden Among Families of Paediatric Patients With Tuberculosis: A Mixed-Methods Study.Journal of advanced nursing · 2026Article
- Caregiver burden and associated factors among primary caregivers of children with epilepsy in southwestern Uganda.Epilepsy & behavior reports · 2026Article
- Psychological Burden Among Family Caregivers of People with Epilepsy in Limpopo and Mpumalanga Provinces, South Africa: A Qualitative Study.Behavioral sciences (Basel, Switzerland) · 2026Article
- Prediction of Zonisamide Concentration in Pediatric Patients With Epilepsy: A Machine Learning Approach.CNS neuroscience & therapeutics · 2026Article
- Coping strategies of parents of children with chronic diseases and their relationship with caregiving burden.BMC pediatrics · 2026Article
- Article
- Association between perception of stigma and caregiver burden among mothers of children with cleft lip and palate surgeries and the mediating role of psychological resilience.Scientific reports · 2025Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objective: This study aimed to investigate the current status of affiliated stigma and caregiver burden among parents of children with epilepsy, analyze their correlation, and identify factors influencing affiliated stigma. Methods: A cross-sectional survey was conducted among 194 parents of children with epilepsy who met the inclusion and exclusion criteria in Shenzhen City, Guangdong Province, China. Data were collected through questionnaires, including a demographic information sheet, an affiliated stigma scale, and a caregiver burden scale. Results: The results revealed that parents of children with epilepsy experienced a moderate level of affiliated stigma, with an average score of 54.92 ± 10.44. Similarly, caregiver burden scores fell within the moderate range, with an average score of 44.14 ± 16.02. Factors influencing affiliated stigma scores included the frequency of epileptic seizures in children, the types of anti-epileptic medications taken by children, and the place of residence. The total caregiver burden score and scores in various dimensions (emotional, cognitive, and behavioral) of caregivers for epilepsy patients were positively correlated with the affiliated stigma score. Affiliated stigma was found to independently explain 21.3 % of the variation in caregiver burden. Conclusion: In the future, healthcare professionals should develop targeted interventions for children with epilepsy and their parents to reduce affiliated stigma, decrease caregiver burden, and enhance the caregiving capabilities of parents of children with epilepsy. These measures are essential to improve the overall well-being of both parents and children affected by epilepsy.
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