Evidence map›Paper›PMID 38507152›Full record

ArticleJournal of autism and developmental disorders2025

Autistic People's Perspectives on Functioning Labels and Associated Reasons, and Community Connectedness.

Nathan Keates, Farradeh Martin, Krysia Emily Waldock

Erratum issuedAbstract read
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In one paragraph

Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

3 authors.

Nathan KeatesUniversity of Sunderland in London, 197 Marsh Wall, Docklands, London, E14 9SG, UK. Nathan.keates@sunderland.ac.uk.ORCID http://orcid.org/0000-0003-3070-1580
Farradeh MartinSchool of History, University of Kent, Canterbury, Kent, CT2 7NZ, UK.ORCID http://orcid.org/0000-0003-3560-8123
Krysia Emily WaldockTizard Centre, University of Kent, Canterbury, Kent, CT2 7NZ, UK.ORCID http://orcid.org/0000-0001-9631-3930

Funding

Faculty of Social Sciences, University of Kent Faculty of Social Sciences, University of Kent
6 · The paper itself

Abstract

purposeFunctioning labels have been used in relation to autistic people and differentiating between support needs. The main purpose of our study was to identify perspectives regarding language about being autistic. In regard to themselves and functioning. Furthermore, we investigated the influential factor of community connectedness on use of language acceptability and functioning labels.

methods516 autistic respondents completed our survey. We asked about demographic characteristics, how respondents would like autistic people to be termed in the survey, and their acceptability (person with autism, Aspergers, disorder, conditions, living with autism, autistic). We also asked about respondents? Autistic Community Connectedness, acknowledging the implicit nature of language and identity (Stets & Serpe in New directions in identity theory and research, Oxford University Press, 2016). The main focus of our survey was whether or not to use functioning labels, and the supporting rationale.

results97% of respondents stated that they find the term 'autistic' acceptable. Respondents who did see merit in using functioning labels to describe autistic people also reported not necessarily using them about themselves. Community membership was found to impact the participants' language preferences to describe the support needs of autistic people, including the use of functioning labels.

conclusionThe proposed best option for language preferences is not to find consensus but instead, opt for the optimal choice that people find the least offensive or disagreeable. This means using identity-first language and not using functioning labels.

Indexed as

Autistic DisorderLanguageAdolescentAdultAgedFemaleHumansMaleMiddle AgedSurveys and QuestionnairesYoung AdultAutismCommunityFunctioning labelsIdentity-first languageLanguage

Identifiers

PMID38507152

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.