ArticleItalian journal of pediatrics2024
The specialized pediatric palliative care service in Italy: how is it working? Results of the nationwide PalliPed study.
Article in Italian journal of pediatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Pediatric palliative care in practice: real-world service utilization and care pathways in a regional Italian health system.European journal of pediatrics · 2026Observational
- Hospital organisation and healthcare providers' barriers in the management of fetuses and newborns affected by life-limiting or life-threatening conditions in Italy: a national survey.European journal of pediatrics · 2026Article
- Training Healthcare Assistants for School-Based Care of Children Receiving Paediatric Palliative Care: A Post-Training Evaluation.Children (Basel, Switzerland) · 2026Article
- Understanding Maternal Role in Caring for Children with Severe Cognitive Impairment in Paediatric Palliative Care: A Qualitative Pilot Study.Children (Basel, Switzerland) · 2026Article
- I have the right to carry a backpack: access to the school of children and adolescents in paediatric palliative care in the Veneto Region (Italy).Italian journal of pediatrics · 2025Article
- Pediatrics advances in 2024: choices in allergy, cardiology, critical care, endocrinology, gastroenterology, immunology, infectious diseases, neonatology, nephrology, neurology, nutrition, palliative care respiratory tract illnesses, and social media.Italian journal of pediatrics · 2025Review
- A new palliative and pain educational model for pediatric residents.Italian journal of pediatrics · 2025Article
- Specialized pediatric palliative care in Italy: where are we going? The Palliped 2022-2023 study.Italian journal of pediatrics · 2025Observational
- Professional benefits perception among pediatric nurses: a cross-sectional survey.Frontiers in pediatrics · 2025Article
- Needs, status and future directions in palliative care for children with cancer: an insight into the Italian situation.Frontiers in oncology · 2025Review
- A 15-year experience in pediatric palliative care: a retrospective hospital-based study.BMC palliative care · 2024Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAccurate estimation of the specialized pediatric palliative care (PPC) burden and the definition of the extent and quality of PPC service in Italy represent urgent needs to enable the proper allocation of PPC resources and the definition of prevention and educational plans. The PalliPed project aimed to provide the first comprehensive assessment of the characteristics of Italian patients requiring PPC, the quality and extent of regional PPC networks/facilities, and the number of dedicated resources. In this paper, we present the results of the second part of the project, regarding the implementation and quality of PPC services in Italy.
methodsThe PalliPed study had an observational cross-sectional design. All Italian specialized PPC centers/facilities were invited to participate in the project and complete a survey on the characteristics of PPC centers/facilities in different care settings, reporting data as of 24 October 2022. Data were collected online.
results19 PPC specialized centers/facilities from 12 Italian regions and two autonomous provinces responded to the survey. Among them, 11 are regional referral centers. Seven Italian regions out of 20 reported no PPC centers/facilities, mainly in central-southern Italy. Less than half (45%) of the regional referral centers cover the entire regional territory, and three offer 24/7 service. Ten centers have a dedicated team. Half of the eight non-referral centers offer 24/7 service and have a dedicated team. A total of 1,092 patients were reported by 18 centers as of 24 October 2022. Over the years, an increasing number of patients has been reported, rising from 1,202 (2019) to 1,544 (2021). The dedicated staff is inadequate, and most healthcare providers are not recognized at an institutional level. A shortage of 'young' staff and a lack of specific training was reported, particularly among nurses (77% had no training in PPC).
conclusionsThe results obtained show how training, information, and research interventions are still necessary for the reorganization of the available resources and definition of proper strategies to respond dynamically to the new emerging needs of these populations. At the same time, our study represents a first step in defining a national registry of PPC models, useful for monitoring evolutions, and critical issues and planning any new or corrective strategy.
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