ArticleAutism : the international journal of research and practice2024
Caregiver-centred empowerment for families raising autistic children: A qualitative case study from Argentina.
Article in Autism : the international journal of research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed, 11 citations in OpenAlex.
- Review
- Overcoming Stigma in Neurodiversity: Toward Stigma-Informed ABA Practice.Behavior analysis in practice · 2026Review
- Trajectories of family resilience among caregivers of older adults with dementia: a longitudinal study in community-based geriatric care settings.Frontiers in public health · 2026Article
- Mapping caregivers' distress: a network analysis of burden, meaning in life, and mental health in families facing suicidal behavior.Borderline personality disorder and emotion dysregulation · 2025Article
- Empowerment ability of main caregivers of children with intracranial tumors after surgery: a cross-sectional survey.Frontiers in pediatrics · 2025Article
- Analysis of Obstetric Nursing Interventions for Home Monitoring of Neonatal Jaundice.Journal of multidisciplinary healthcare · 2025Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 3 countries.
Funding
Abstract
lay abstractCaregivers of children with developmental disabilities, including autism, often struggle to access services, information and resources in Argentina. Little is known about how caregivers can be empowered to support their children as they wish to in the Argentinian setting. We spoke with 32 people online to understand existing and potential practices of supporting caregivers. The people we spoke with included caregivers, health service providers, non-governmental organisations' representatives providing services or technical support, special education teachers and policy representatives. Participants said that poverty, and inequalities in accessing support, impact how caregivers can support their children. They mentioned examples that help caregivers feel empowered, such as peer support groups and caregiver training. Many caregivers spoke about how they became advocates for their children and how they developed initiatives such as advocacy campaigns and well-being support groups. Caregivers in Argentina may be empowered in various ways, and the following strategies can improve empowerment: strengthening collaboration between professionals and caregivers; focusing on caregiver mental health; and addressing the profound impact of poverty on the quality of life of families.
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Registered trials
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