ArticlePEC innovation2024
Parents' information needs during the first year at home with their very premature born child; a qualitative study.
Article in PEC innovation, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- Integrating optimal patient-centered care: patient- and family-reported experiences after complex treatment for rare diseases.World journal of pediatrics : WJP · 2026Article
- Article
- Evaluating Mobile Information Apps for Parents of Preterm Infants After Hospital Discharge: Systematic App Review.JMIR pediatrics and parenting · 2026Article
- Analysis of care needs for primary caregivers of premature infants at home based on the Kano model: A cross-sectional study.PloS one · 2026Article
- An Information App (e-TOP) to Support Parents' Information Needs During the First Year at Home After Preterm Birth: Development and Usability Study.JMIR pediatrics and parenting · 2025Article
- Editorial - Advancing family integrated care through health promotion, education, and communication.PEC innovation · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objective: To obtain insights into parents' information needs during the first year at home with their very preterm (VP) born infant. Methods: We conducted semi-structured interviews with parents of VP infants participating in a post-discharge responsive parenting intervention (TOP program). Online interviews were audiotaped and transcribed verbatim. Inductive thematic analysis was performed by two independent coders. Results: Ten participants were interviewed and had various and changing information needs during the developmental trajectory of their infant. Three main themes emerged; (1) Help me understand and cope, (2) Be fully responsible for my baby, and (3) Teach me to do it myself. Available and used sources, such as the Internet, did not meet their information needs. Participants preferred their available and knowledgeable healthcare professionals for reassurance, tailored information, and practical guidance. Conclusion: This study identified parents' information needs during the first year at home with their VP infant and uncovered underlying re-appearing needs to gain confidence in child-caring abilities and autonomy in decision-making about their infants' care. Innovation: This study provides valuable information for healthcare professionals and eHealth developers to support parental self-efficacy during the first year after preterm birth.
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Registered trials
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