Evidence map›Paper›PMID 38488740›Full record

ArticleJMIRx med2024

Impact of the COVID-19 Pandemic on Latino Families With Alzheimer Disease and Related Dementias: Qualitative Interviews With Family Caregivers and Primary Care Providers.

Jaime Perales-Puchalt, Jill Peltzer, Monica Fracachan-Cabrera, G Adriana Perez, Mariana Ramírez, K Allen Greiner, Jeffrey Murray Burns

Abstract read
In one paragraph

Article in JMIRx med, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

7 authors.

Jaime Perales-PuchaltDepartment of Neurology, University of Kansas Alzheimer's Disease Research Center, Fairway, KS, United States.ORCID http://orcid.org/0000-0003-1013-7847
Jill PeltzerDepartment of Family Medicine, University of Kansas Medical Center, Kansas City, KS, United States.ORCID http://orcid.org/0000-0002-8529-5172
Monica Fracachan-CabreraDepartment of Family Medicine, University of Kansas Medical Center, Kansas City, KS, United States.ORCID http://orcid.org/0000-0001-9419-101X
G Adriana PerezSchool of Nursing, University of Pennsylvania, Philadelphia, PA, United States.ORCID http://orcid.org/0000-0003-1143-2629
Mariana RamírezDepartment of Family Medicine, University of Kansas Medical Center, Kansas City, KS, United States.ORCID http://orcid.org/0000-0001-6744-0957
K Allen GreinerDepartment of Family Medicine, University of Kansas Medical Center, Kansas City, KS, United States.ORCID http://orcid.org/0000-0001-9883-4203
Jeffrey Murray BurnsDepartment of Neurology, University of Kansas Alzheimer's Disease Research Center, Fairway, KS, United States.ORCID http://orcid.org/0000-0001-7609-8954

Funding

University of Kansas Alzheimer's Disease Research Center (KU ADRC)P30AG072973 · NIA · UNIVERSITY OF KANSAS MEDICAL CENTER · PI Jaime Perales Puchalt · 2021 to 2026
$25.3M
SAFE Futures: Supporting American Indian and Alaska Native (AIAN) Maternal Health through Virtual Engagement and Community EmpowermentP20GM139733 · NIGMS · UNIVERSITY OF KANSAS MEDICAL CENTER · PI Christie Befort · 2023 to 2026
$11.5M
Aligning PCPs and Patients with Alzheimer's Research Efforts: MyAlliance for Cognitive HealthR24AG063724 · NIA · UNIVERSITY OF KANSAS MEDICAL CENTER · PI BURNS, JEFFREY MURRAY, VIDONI, ERIC DENNIS · 2020 to 2022
$4.1M
Feasibility of a Novel Systems Approach for Improving Utilization of Alzheimer's Disease Services Among Latinos Attending Primary Care PracticesK01MD014177 · NIMHD · UNIVERSITY OF KANSAS MEDICAL CENTER · PI PERALES PUCHALT, JAIME · 2020 to 2024
$571k
NIA NIH HHS P30 AG072973NIA NIH HHS R24 AG063724NIMHD NIH HHS K01 MD014177
6 · The paper itself

Abstract

Background: Latino individuals experience disparities in the care of Alzheimer disease and related dementias (ADRD) and have disproportionately high COVID-19 infection and death outcomes. Objective: We aimed to gain an in-depth understanding of the impact of the COVID-19 pandemic among Latino families with ADRD in the United States. Methods: This was a qualitative study of 21 informal caregivers of Latino individuals with ADRD and 23 primary care providers who serve Latino patients. We recruited participants nationwide using convenience and snowball sampling methods and conducted remote interviews in English and Spanish. We organized the transcripts for qualitative review to identify codes and themes, using a pragmatic approach, a qualitative description methodology, and thematic analysis methods. Results: Qualitative analysis of transcripts revealed eight themes, including (1) the pandemic influenced mental and emotional health; (2) the pandemic impacted physical domains of health; (3) caregivers and care recipients lost access to engaging activities during the confinement; (4) the pandemic impacted Latino caregivers' working situation; (5) the pandemic impacted health care and community care systems; (6) health care and community care systems took measures to reduce the impact of the pandemic; (7) Latino families experienced barriers to remote communication during the pandemic; and (8) caregiver social support was critical for reducing social isolation and its sequalae. Conclusions: Latino families with ADRD experienced similar but also unique impacts compared to those reported in the general population. Unique impacts may result from Latino individuals' underserved status in the United States, commonly held cultural values, and their intersectionality with ADRD-related disability. Family caregiver social support was crucial during this time of adversity. These findings suggest the need for more equitable access, culturally appropriate and trustworthy content and delivery of health care and community services, as well as stronger financial and social supports for family caregivers.

Indexed as

AlzheimerAlzheimer diseaseAlzheimer’sAlzheimer’s diseasecaregivercaregivingCOVID-19dementiadisparityepidemiologyhealth carehealth disparityhealth inequalityimpactinterviewLatinominorityminority populationoutcomepeer supportprimary carequalitativequalitative researchresiliencesocial servicestranscript analysis

Identifiers

PMID38488740
PMCPMC11004515

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.