Evidence map›Paper›PMID 38480788›Full record

ArticleJournal of perinatology : official journal of the California Perinatal Association2024

End of life care in a level IV outborn neonatal intensive care unit.

Catherine M Groden, Mona Raed, Paul Helft, Jayme D Allen

Abstract read
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In one paragraph

Article in Journal of perinatology : official journal of the California Perinatal Association, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Guideline
  2. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Catherine M GrodenSection of Neonatology, University of Chicago, Chicago, IL, USA. catherinegroden@gmail.com.ORCID 0000-0003-0257-2785
Mona RaedDivision of Palliative Care, Community Health Network, Indianapolis, IN, USA.
Paul HelftDivision of Hematology-Oncology, Indiana University School of Medicine, Indianapolis, IN, USA.
Jayme D AllenDivision of Neonatal-Perinatal Medicine, Indiana University School of Medicine, Indianapolis, IN, USA.ORCID 0009-0005-6625-4518

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveDescribe care surrounding the end of life (EOL) in the neonatal intensive care unit (NICU). STUDY

designRetrospective chart review of 208 infants who died in a level IV referral-only NICU over 5 years.

resultsA goals of care (GOC) conversation was documented before the day of death for 63% of infants. 73% died following withdrawal of life-sustaining treatment (WD); 13% died in a code. The median age at death was 17.5 days. 72% were held by a parent at EOL. 94% of families desired formal memory-making. We identified associations with mode of death and parental holding at death, including: WD was associated with palliative care consultation, early GOC conversations, and increased unit-specific length of stay. Holding was associated with chaplain visits, memory-making, and increased home-to-hospital distance.

conclusionWe present a detailed description of EOL care in an outborn NICU, including novel data on parental holding and memory-making.

Indexed as

Intensive Care Units, NeonatalParentsTerminal CareFemaleHumansInfant, NewbornMalePalliative CareRetrospective StudiesWithholding Treatment

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.