Evidence map›Paper›PMID 38476249›Full record

ArticleJournal of clinical and translational science2024

Transportation, childcare, lodging, and meals: Key for participant engagement and inclusion of historically underrepresented populations in the healthy brain and child development birth cohort.

Aleksandra E Zgierska, Tatum Gramly, Nicholas Prestayko, Danielle Symons Downs, Traci M Murray, Lea G Yerby, Brittany Howell, Barbara Stahlman, Jennifer Cruz, Arjola Agolli and 4 more

Open access · goldAbstract read
In one paragraph

Article in Journal of clinical and translational science, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
3.1field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 10 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 7 institutions in 1 country.

Aleksandra E ZgierskaDepartments of Family and Community Medicine, Anesthesiology and Perioperative Medicine, and Public Health Sciences, Pennsylvania State University College of Medicine, Hershey, PA, USA.ORCID https://orcid.org/0000-0002-7773-6003
Tatum GramlyDepartment of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
Nicholas PrestaykoDepartment of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
Danielle Symons DownsDepartment of Kinesiology and College of Medicine, Department of Obstetrics and Gynecology, Pennsylvania State University College of Health and Human Development, University Park, PA, USA.
Traci M MurrayNational Institutes of Health, National Institute on Drug Abuse, Bethesda, MD, USA.
Lea G YerbyDepartment of Community Medicine and Population Health, The University of Alabama College of Community Health Sciences, Tuscaloosa, AL, USA.
Brittany HowellDepartment of Human Development and Family Science, Virginia Tech, Fralin Biomedical Research Institute, Roanoke, VA, USA.
Barbara StahlmanDepartment of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
Jennifer CruzDepartment of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
Arjola AgolliDepartment of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
Holly HoranDepartment of Obstetrics and Gynecology, Global and Rural Women's Health Program, Heersink School of Medicine, The University of Alabama at Birmingham, Birmingham, AL, USA.
Florence HilliardUniversity of Wisconsin-Madison Waisman Center, Madison, WI, USA.
Julie M CroffOklahoma State University Center for Health Sciences, Tulsa, OK, USA.
HEALthy Brain and Child Development (HBCD) Consortium
Pennsylvania State University · USCarilion Roanoke Memorial Hospital · USNational Institutes of Health · USOklahoma State University Center for Health Sciences · USUniversity of Alabama · USUniversity of Alabama at Birmingham · USUniversity of Wisconsin–Madison · US

Funding

The Healthy Brain and Child Development National Consortium Administrative CoreU24DA055325 · NIDA · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI CHRISTINA CHAMBERS, CHARLES Alexander NELSON · 2021 to 2026
$40.8M
The Impact of Maternal Adversity and Attachment Security on Infant Stress Reactivity: Prenatal Epigenetic PathwaysP20GM109097 · NIGMS · OSU CENTER FOR HEALTH SCIENCES · PI Dian Yu · 2016 to 2026
$22.8M
HEALthy Brain and Child Development Study at UAB and UAU01DA055322 · NIDA · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI Rajesh K Kana, Cassandra R. Newsom · 2021 to 2026
$11.2M
An examination of recruitment and retention for clinical infant neuroimaging studiesU01DA055357 · NIDA · VIRGINIA POLYTECHNIC INST AND ST UNIV · PI Martha Ann Bell, BRITTANY ROLLINS HOWELL · 2022 to 2026
$8.2M
21/24 Healthy Brain and Child Development National ConsortiumU01DA055370 · NIDA · UNIVERSITY OF WISCONSIN-MADISON · PI Douglas Carl Dean III, JULIE A POEHLMANN · 2021 to 2026
$8.1M
13/24 The Healthy Brain and Child Development National ConsortiumU01DA055361 · NIDA · PENNSYLVANIA STATE UNIVERSITY, THE · PI Koraly E Perez-Edgar, Aleksandra Ewa Zgierska · 2021 to 2026
$7.8M
Factors that Influence Risk and Resilience Trajectories of NeurodevelopmentU01DA055349 · NIDA · OSU CENTER FOR HEALTH SCIENCES · PI Julie May Croff, AMANDA S MORRIS · 2021 to 2026
$7.3M
NIDA NIH HHS U01 DA055322NIDA NIH HHS U01 DA055349NIDA NIH HHS U01 DA055357NIDA NIH HHS U01 DA055361NIDA NIH HHS U01 DA055370NIDA NIH HHS U24 DA055325NIGMS NIH HHS P20 GM109097
6 · The paper itself

Abstract

Introduction: Participant recruitment and retention (R&R) are well-documented challenges in longitudinal studies, especially those involving populations historically underrepresented in research and vulnerable groups (e.g., pregnant people or young children and their families), as is the focus of the HEALthy Brain and Child Development (HBCD) birth cohort study. Subpar access to transportation, overnight lodging, childcare, or meals can compromise R&R; yet, guidance on how to overcome these "logistical barriers" is sparse. This study's goal was to learn about the HBCD sites' plans and develop best practice recommendations for the HBCD consortium for addressing these logistical barriers. Methods: The HBCD's workgroups developed a survey asking the HBCD sites about their plans for supporting research-related transportation, lodging, childcare, and meals, and about the presence of institutional policies to guide their approach. Descriptive statistics described the quantitative survey data. Qualitative survey responses were brief, not warranting formal qualitative analysis; their content was summarized. Results: Twenty-eight respondents, representing unique recruitment locations across the U.S., completed the survey. The results indicated substantial heterogeneity across the respondents in their approach toward supporting research-related transportation, lodging, childcare, and meals. Three respondents were aware of institutional policies guiding research-related transportation (10.7%) or childcare (10.7%). Conclusions: This study highlighted heterogeneity in approaches and scarcity of institutional policies regarding research-related transportation, lodging, childcare, and meals, underscoring the need for guidance in this area to ensure equitable support of participant R&R across different settings and populations, so that participants are representative of the larger community, and increase research result validity and generalizability.

Indexed as

Childcarelodgingmealrecruitmentretentiontransportation

Identifiers

PMID38476249
PMCPMC10928703
OpenAlexW4391738534

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.