Evidence map›Paper›PMID 38473299›Full record

ArticleCancers2024

Evaluation of Quality of Life and Treatment Satisfaction in Newly Diagnosed Cutaneous T-Cell Lymphoma Patients.

Rosanne Ottevanger, Sylvia van Beugen, Juliette M Kersten, Andrea W M Evers, Maarten H Vermeer, Rein Willemze, Koen D Quint

Open access · goldAbstract read
In one paragraph

Article in Cancers, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.1field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 2 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 1 country.

Rosanne OttevangerDepartment of Dermatology, Leiden University Medical Center, 2333 ZA Leiden, The Netherlands.
Sylvia van BeugenHealth, Medical and Neuropsychology Unit, Institute of Psychology, Leiden University, 2311 EZ Leiden, The Netherlands.
Juliette M KerstenDepartment of Dermatology, Leiden University Medical Center, 2333 ZA Leiden, The Netherlands.
Andrea W M EversHealth, Medical and Neuropsychology Unit, Institute of Psychology, Leiden University, 2311 EZ Leiden, The Netherlands.
Maarten H VermeerDepartment of Dermatology, Leiden University Medical Center, 2333 ZA Leiden, The Netherlands.ORCID 0000-0002-5872-4613
Rein WillemzeDepartment of Dermatology, Leiden University Medical Center, 2333 ZA Leiden, The Netherlands.ORCID 0000-0002-4561-7616
Koen D QuintDepartment of Dermatology, Leiden University Medical Center, 2333 ZA Leiden, The Netherlands.
Leiden University Medical Center · NLLeiden University · NL

Funding

Kyowa Kirin B.V. 8224-41473
6 · The paper itself

Abstract

backgroundLittle is known about the impact of MF on quality of life (QoL) in newly diagnosed patients.

objectivesTo describe the impact of the MF diagnosis on QoL, patient expectations, and treatment satisfaction over the first 6 months after diagnosis.

methodsOutcomes of this prospective cohort study of newly diagnosed MF patients conducted between 2020 and 2022 at the Leiden University Medical Center included the Skindex-29, RAND-12 Health Survey, degree of itch, pain, and fatigue (Visual Analogue Scale (VAS)), patient expectations, and Client Satisfaction Questionnaire-8 (CSQ-8), measured at baseline and after six months.

resultsA total of 28 patients with MF were included. At baseline, 66% (n = 18) "strongly-totally" expected positive effects of the treatment. At the time of diagnosis, 28% of the patients (n = 8) were moderately to severely affected. There was no statistical change in the Skindex-29 score sum score (20 [10-34] vs. 20 [9-36];

conclusionDespite that the newly diagnosed MF patients anticipate a positive treatment effect, few improvements in QoL and symptom reduction were found. These data can be used for adequate expectation management and provide a rationale for further evaluation of treatment regimens in these patients.

Indexed as

cutaneous T-cell lymphomamycosis fungoidesquality of lifeSezary syndrometreatment expectationstreatment satisfaction

Identifiers

PMID38473299
PMCPMC10930716
OpenAlexW4392166789

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.