Evidence map›Paper›PMID 38470643›Full record

ArticleHealthcare (Basel, Switzerland)2024

Measures for Persons with Spinal Cord Injury to Monitor Their Transitions in Care, Health, Function, and Quality of Life Experiences and Needs: A Protocol for Co-Developing a Self-Evaluation Tool.

Katharina Kovacs Burns, Zahra Bhatia, Benveet Gill, Dalique van der Nest, Jason Knox, Magda Mouneimne, Taryn Buck, Rebecca Charbonneau, Kasey Aiello, Adalberto Loyola Sanchez and 3 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Healthcare (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Katharina Kovacs BurnsClinical Quality Metrics/Primary Data Support, Data & Analytics, Alberta Health Services, Edmonton, AB T5J 3E4, Canada.ORCID 0000-0002-6322-0778
Zahra BhatiaSpinal Cord Injury Alberta, Calgary, AB T2H 1H7, Canada.
Benveet GillReYu Paralysis Recovery Centre, Edmonton, AB T5S 1G8, Canada.
Dalique van der NestSlave Lake Healthcare Centre (North Zone), Alberta Health Services, Slave Lake, AB T0G 2A2, Canada.
Jason KnoxTertiary Neurorehabilitation, Foothills Medical Centre, Calgary, AB T2N 2T9, Canada.
Magda MouneimneTertiary Neurorehabilitation, Foothills Medical Centre, Calgary, AB T2N 2T9, Canada.
Taryn BuckGlenrose Rehabilitation Hospital, Edmonton, AB T5G 0B7, Canada.
Rebecca CharbonneauPhysical Medicine and Rehabilitation, Foothills Medical Centre, Calgary, AB T2N 2T9, Canada.ORCID 0009-0006-6145-071X
Kasey AielloPatient Liaison to Neurosciences, Foothills Medical Centre, Calgary, AB T2N 2T9, Canada.
Adalberto Loyola SanchezDivision of Physical Medicine & Rehabilitation, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, AB T6G 2S2, Canada.ORCID 0000-0002-0082-2907
Rija KamranRehabilitation Sciences, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB T2N 1N4, Canada.
Olaleye OlayinkaDivision of Physical Medicine & Rehabilitation, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, AB T6G 2S2, Canada.
Chester HoGlenrose Rehabilitation Hospital, Edmonton, AB T5G 0B7, Canada.

Funding

CIHR 2019
6 · The paper itself

Abstract

Evaluating the experiences of persons with spinal cord injury (PwSCI) regarding their transitions in care and changes in health, function, and quality of life is complex, fragmented, and involves multiple tools and measures. A staged protocol was implemented with PwSCI and relevant expert stakeholders initially exploring and selecting existing measures or tools through a modified Delphi process, followed by choosing one of two options. The options were to either support the use of the 10 selected tools from the Delphi method or to co-develop one unique condensed tool with relevant measures to evaluate all four domains. The stakeholders chose to co-develop one tool to be used by persons with SCI to monitor their transition experiences across settings and care providers. This includes any issues with care or support they needed to address at the time of discharge from acute care or rehabilitation and in the community at 3, 6, and 12 months or longer post-discharge. Once developed, the tool was made available online for the final stage of the protocol, which proposes that the tool be reliability tested prior to its launch, followed by validation testing by PwSCI.

Indexed as

function changeshealth changesmixed methodsmodified Delphipersons with spinal cord injuryprotocolquality of lifeself-evaluation measurestool co-developmenttransitions in care

Identifiers

PMID38470643
PMCPMC10930772

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.