ArticleJMIR pediatrics and parenting2024
Guiding Principles for Adolescent Web-Based Portal Access Policies: Interviews With Informatics Administrators.
Article in JMIR pediatrics and parenting, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- Pediatric oncology healthcare professionals' attitudes to and awareness of regulations for minors' and guardians' online record access: a mixed-methods study in Sweden.BMC health services research · 2025Article
- Parental Access to Adolescent Online Healthcare Portals: Benefits, Problems, and Barriers.Applied clinical informatics · 2025Article
- Patient Portal Use Among Patients With Vascular Anomalies and Their Caregivers.Pediatric blood & cancer · 2025Article
- Misattributed paternity discovery: A critique of medical organizations' recommendations.American journal of human genetics · 2025Review
- Potential of patient portals to enhance adolescent asthma care engagement.Health care transitions · 2025Article
- A non-fungible token (NFT)-Based framework for antenatal care in resource-constrained settings.Digital healthArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWeb-based patient portals are tools that could support adolescents in managing their health and developing autonomy. However, informatics administrators must navigate competing interests when developing portal access policies for adolescents and their parents.
objectiveWe aimed to assess the perspectives of informatics administrators on guiding principles for the development of web-based health care portal access policies in adolescent health care.
methodsWe interviewed informatics administrators from US hospitals with ≥50 dedicated pediatric beds. We performed a thematic analysis of guiding principles for developing and implementing adolescent portal access policies.
resultsWe interviewed 65 informatics leaders who represented 63 pediatric hospitals, 58 health care systems, 29 states, and 14,379 pediatric hospital beds. Participants described 9 guiding principles related to three overarching themes: (1) balancing confidentiality and other care needs, (2) balancing simplicity and granularity, and (3) collaborating and advocating. Participants described the central importance of prioritizing the health and safety of the adolescent while also complying with state and federal laws. However, there were differing beliefs about how to prioritize health and safety and what role parents should play in supporting the adolescent's health care. Participants also identified areas where clinicians and institutions can advocate for adolescents, especially with electronic health record vendors and legislators.
conclusionsInformatics administrators provided guiding principles for adolescent portal access policies that aimed to balance the competing needs of adolescent confidentiality and the usefulness of the portal. Portal access policies must prioritize the adolescent's health and safety while complying with state and federal laws. However, institutions must determine how to best enact these principles. Institutions and clinicians should strive for consensus on principles to strengthen advocacy efforts with institutional leadership, electronic health record vendors, and lawmakers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.