ArticleRevista da Escola de Enfermagem da U S P2024
Families' situation of caring for a child with a chronic condition: a mixed methods study.
Article in Revista da Escola de Enfermagem da U S P, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- Family experiences in managing mental disorders in adolescents.Revista brasileira de enfermagem · 2026Article
- Father participation in the care of a critically ill child: a scoping review.Revista da Escola de Enfermagem da U S P · 2025Article
- Family management characteristics in parents of children with retinoblastoma: a latent profile analysis.Frontiers in pediatrics · 2025Article
- Cultural modulation of family care for technology-dependent children: an ethnographic study.Revista da Escola de Enfermagem da U S P · 2025Article
- Social support for family caregivers of children and youth with special health care needs for home care: a scoping review.Revista da Escola de Enfermagem da U S P · 2025Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF).
methodA mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component "Definition of the Situation". Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis.
resultsFamily members reported a view of normality in relation to CCC, also verified by the Child's Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child's care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales.
conclusionFamilies have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.
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