Evidence map›Paper›PMID 38462475›Full record

ArticleQualitative health research2024

Mpox Illness Narratives: Stigmatising Care and Recovery During and After an Emergency Outbreak.

Anthony K J Smith, Daniel Storer, Kari Lancaster, Bridget Haire, Christy E Newman, Sara Paparini, James MacGibbon, Vincent J Cornelisse, Timothy R Broady, Timmy Lockwood and 3 more

Open access · hybridAbstract read
In one paragraph

Article in Qualitative health research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
7.9field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. Article
  7. Review
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 4 institutions in 2 countries.

Anthony K J SmithCentre for Social Research in Health, UNSW Sydney, Sydney, NSW, Australia.ORCID 0000-0002-0005-9542
Daniel StorerSchool of Population Health, UNSW Sydney, Sydney, NSW, Australia.
Kari LancasterCentre for Social Research in Health, UNSW Sydney, Sydney, NSW, Australia.
Bridget HaireAustralian Human Rights Institute, UNSW Sydney, Sydney, NSW, Australia.
Christy E NewmanCentre for Social Research in Health, UNSW Sydney, Sydney, NSW, Australia.
Sara PapariniSHARE Collaborative, Wolfson Institute of Population Health, Queen Mary University of London, London, UK.
James MacGibbonCentre for Social Research in Health, UNSW Sydney, Sydney, NSW, Australia.
Vincent J CornelisseKirby Institute, UNSW Sydney, Sydney, NSW, Australia.ORCID 0000-0003-0657-9677
Timothy R BroadyCentre for Social Research in Health, UNSW Sydney, Sydney, NSW, Australia.
Timmy LockwoodNSW Health, Sydney, NSW, Australia.
Anna McNultySchool of Population Health, UNSW Sydney, Sydney, NSW, Australia.
Valerie DelpechNorth Coast Population and Public Health Directorate, Port Macquarie, NSW, Australia.
Martin HoltCentre for Social Research in Health, UNSW Sydney, Sydney, NSW, Australia.
UNSW Sydney · AUAustralian Human Rights Commission · AUNew South Wales Department of Health · AUQueen Mary University of London · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In May 2022, a global outbreak of mpox (formerly monkeypox virus) affected thousands of mainly gay and bisexual men. Mpox is usually a time-limited illness that can involve fever, pain, and skin lesions, but may require hospitalisation. There is scant research into the firsthand experiences of people affected by mpox, including experiences of symptoms, healthcare, and recovery. This study considers the different illness narratives of people who experienced mpox in Australia in 2022. In-depth interviews and 6-month follow-up interviews were conducted with 16 people, including 13 people diagnosed with mpox and three close contacts. All participants were cisgender gay or bisexual men living in Australia. Participants' accounts described minor to severe periods of sickness, negative and stigmatising experiences engaging with healthcare, and some participants experienced long-term effects on their sexual well-being and complications from mpox. The emergency outbreak context meant that mpox was highly distressing, making it difficult to manage and producing varying forms of disruption to everyday life. Mpox was narrated as disruptive in different ways: as a minor interruption to holiday plans, a prolonged period of poor health, or a biographically disruptive event prompting a re-evaluation of sexual values and health. This analysis demonstrates that an unfamiliar emergent disease outbreak related to sexual practices and sociality can reconfigure personal life and sexual well-being, suggesting a need to focus on providing quality patient care in outbreaks of mpox and other infectious diseases.

Indexed as

Disease OutbreaksAdultAgedAustraliaHomosexuality, MaleHumansInterviews as TopicMaleMiddle AgedMpox, MonkeypoxNarrationQualitative ResearchSexual and Gender MinoritiesSocial StigmaYoung Adultbiographical disruptiongay and bisexual menmpoxpublic healthsociologystigma

Identifiers

PMID38462475
PMCPMC11520255
OpenAlexW4392843082

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.