Evidence map›Paper›PMID 38456477›Full record

ArticleWestern journal of nursing research2024

Thematic Analysis of Alzheimer's Medication Management Discussion in a Non-Moderated Online Forum.

Jia Liu, Kylie Meyer, Ashlie Glassner, Mitzi Gonzales, Rebecca J Bartlett Ellis, Hyejin Park, Lixin Song, Neela Patel, Jing Wang

Abstract read
In one paragraph

Article in Western journal of nursing research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Jia LiuSchool of Nursing, The University of Texas Health Science Center at San Antonio, San Antonio, TX, USA.ORCID 0000-0003-0990-9299
Kylie MeyerFrances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA.
Ashlie GlassnerSchool of Nursing, The University of Texas Health Science Center at San Antonio, San Antonio, TX, USA.
Mitzi GonzalesBiggs Institute for Alzheimer's and Neurodegenerative Diseases, The University of Texas Health Science Center at San Antonio, San Antonio, TX, USA.
Rebecca J Bartlett EllisSchool of Nursing, Indiana University, Indianapolis, IN, USA.ORCID 0000-0001-5990-3595
Hyejin ParkCollege of Nursing, Florida State University, Tallahassee, FL, USA.
Lixin SongSchool of Nursing, The University of Texas Health Science Center at San Antonio, San Antonio, TX, USA.
Neela PatelDepartment of Family and Community Medicine, The University of Texas Health Science Center at San Antonio, San Antonio, TX, USA.
Jing WangCollege of Nursing, Florida State University, Tallahassee, FL, USA.

Funding

South Texas Alzheimer's Disease Research CenterP30AG066546 · NIA · UNIVERSITY OF TEXAS HLTH SCIENCE CENTER · PI Mohamad Habes · 2021 to 2026
$24.0M
NIA NIH HHS P30 AG066546
6 · The paper itself

Abstract

backgroundManaging medications for Alzheimer's disease and related dementias is challenging for caregivers. Information about caregivers' strategies to manage these challenges is needed to inform intervention development.

objectiveThis study aimed to understand caregivers' medication management experiences by analyzing online community discussions.

methodsPosts were extracted from the ALZConnected

resultsFour major themes emerged: (1) role transition of medication management responsibilities, (2) caregivers' uncertainty about medication purpose and values, (3) conflicts between the care recipients and caregivers, and (4) difficulty accessing and affording medications.

conclusionsThe experiences shared on a non-moderated, unstructured online forum indicate that medication management is challenging and overwhelming for caregivers of people living with Alzheimer's disease and related dementias. Since this is a progressive disease with various stages and changing needs, caregivers' strategies vary and are often limited by available resources and support. Health care providers should offer training and support for caregivers to navigate the transfer of medication management responsibilities and changing care needs as the disease progresses.

Indexed as

Alzheimer DiseaseCaregiversHumansMedication Therapy ManagementAlzheimer’s diseasecaregivermedication adherencemedication managementonline support group

Identifiers

PMID38456477
PMCPMC10955786

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.