Evidence map›Paper›PMID 38450803›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2024

Validating care and treatment scenarios for measuring decisional conflict regarding future care preferences among older adults.

Craig Sinclair, Ling Yeoh, Ava Karusoo-Musumeci, Kirsten A Auret, Josephine M Clayton, Michelle Hilgeman, Elizabeth Halcomb, Ron Sinclair, Angelita Martini, Anne Meller and 5 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
3.3field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it, 6 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Validating care and treatment scenarios for measuring decisional conflict regarding future care preferences among older adults.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 10 institutions in 2 countries.

Craig SinclairSchool of Psychology, University of New South Wales, Sydney, New South Wales, Australia.ORCID 0000-0003-2734-2951
Ling YeohSchool of Psychology, University of New South Wales, Sydney, New South Wales, Australia.
Ava Karusoo-MusumeciNeuroscience Research Australia (NeuRA), Sydney, New South Wales, Australia.
Kirsten A AuretRural Clinical School of Western Australia, University of Western Australia, Albany, Western Australia, Australia.
Josephine M ClaytonThe Palliative Centre, HammondCare, Sydney, New South Wales, Australia.
Michelle HilgemanTuscaloosa Veterans Affairs Medical Center, Tuscaloosa, Alabama, USA.
Elizabeth HalcombSchool of Nursing, University of Wollongong, Wollongong, New South Wales, Australia.
Ron SinclairUniversity of Adelaide, Adelaide, South Australia, Australia.
Angelita MartiniBrightwater Group, Perth, Western Australia, Australia.
Anne MellerPrince of Wales Hospital, South Eastern Sydney Local Health District, Sydney, New South Wales, Australia.
Rebecca WaltonBrightwater Group, Perth, Western Australia, Australia.
Li WeiCollege of Science, Health, Engineering and Education, Murdoch University, Perth, Western Australia, Australia.
Tiet-Hanh Dao-TranCentre for Health Services Research, University of Queensland, Brisbane, Queensland, Australia.
Susan KurrleNorthern Clinical School, University of Sydney, Sydney, New South Wales, Australia.
Tracy ComansCentre for Health Services Research, University of Queensland, Brisbane, Queensland, Australia.
The University of Queensland · AUThe University of Sydney · AUThe University of Western Australia · AUUNSW Sydney · AUMurdoch University · AUNeuroscience Research Australia · AUPrince of Wales Hospital · AUThe University of Adelaide · AUUniversity of Alabama · USUniversity of Wollongong · AU

Funding

National Health and Medical Research Council GNT2006283
6 · The paper itself

Abstract

objectiveDecisional conflict is used increasingly as an outcome measure in advance care planning (ACP) studies. When the Decisional Conflict Scale (DCS) is used in anticipatory decision-making contexts, the scale is typically tethered to hypothetical scenarios. This study reports preliminary validation data for hypothetical scenarios relating to life-sustaining treatments and care utilisation to inform their broader use in ACP studies.

methodsThree hypothetical scenarios were developed by a panel of multidisciplinary researchers, clinicians and community representatives. A convenience sample of 262 older adults were surveyed. Analyses investigated comprehensibility, missing data properties, sample norms, structural, convergent and discriminant validity.

resultsResponse characteristics suggested that two of the scenarios had adequate comprehensibility and response spread. Missing response rates were unrelated to demographic characteristics. Predicted associations between DCS scores and anxiety (r's = .31-.37, p < .001), and ACP engagement (r's = -.41 to -.37, p < .001) indicated convergent validity.

conclusionA substantial proportion of older adults reported clinically significant levels of decisional conflict when responding to a range of hypothetical scenarios about care or treatment. Two scenarios showed acceptable comprehensibility and response characteristics. A third scenario may be suitable following further refinement. PATIENT OR PUBLIC CONTRIBUTION: The scenarios tested here were designed in collaboration with a community representative and were further piloted with two groups of community members with relevant lived experiences; four people with life-limiting conditions and five current or former care partners.

Indexed as

Advance Care PlanningAgedAnxietyHumansResearch DesignResearch Personneladvance care planningdecisional conflictdecision-makingend-of-lifescenarios

Identifiers

PMID38450803
PMCPMC10918722
OpenAlexW4392552409

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.