Evidence map›Paper›PMID 38439061›Full record

ArticleBMC health services research2024

Use, applicability, and dissemination of patient versions of clinical practice guidelines in oncology in Germany: a qualitative interview study with healthcare providers.

Sarah Wahlen, Jessica Breuing, Monika Becker, Stefanie Bühn, Julia Hauprich, Nadja Könsgen, Nora Meyer, Susanne Blödt, Günther Carl, Markus Follmann and 5 more

Open access · goldAbstract read
In one paragraph

Article in BMC health services research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
2.7field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 5 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 5 institutions in 1 country.

Sarah WahlenInstitute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany. sarah.wahlen@outlook.de.
Jessica BreuingInstitute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.
Monika BeckerInstitute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.
Stefanie BühnInstitute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.
Julia HauprichInstitute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.
Nadja KönsgenInstitute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.
Nora MeyerInstitute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.
Susanne BlödtInstitute for Medical Knowledge Management c/o Philipps University Marburg, Association of the Scientific Medical Societies in Germany, Marburg/Berlin, Germany.
Günther CarlGerman Prostate Cancer Support Group, Bonn, Germany.
Markus FollmannOffice of the German Guideline Program in Oncology (GGPO), c/o German Cancer Society, Berlin, Germany.
Stefanie FrenzFrauenselbsthilfe Krebs-Bundesverband e.V., Bonn, Germany.
Thomas LangerOffice of the German Guideline Program in Oncology (GGPO), c/o German Cancer Society, Berlin, Germany.
Monika NothackerInstitute for Medical Knowledge Management c/o Philipps University Marburg, Association of the Scientific Medical Societies in Germany, Marburg/Berlin, Germany.
Corinna SchaeferGerman Agency for Quality in Medicine, Berlin, Germany.
Dawid PieperInstitute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.
Witten/Herdecke University · DEAssociation of the Scientific Medical Societies · DEGerman Cancer Society · DEBundesverband Glaukom-Selbsthilfe · DEGerman Agency for Quality in Medicine · DE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPeople with cancer have high information needs; however, they are often inadequately met. Patient versions of clinical practice guidelines (PVGs), a special form of evidence-based information, translate patient-relevant recommendations from clinical practice guidelines into lay language. To date, little is known about the experience of PVGs from healthcare providers' perspective in healthcare. This study aims to investigate the use, applicability, and dissemination of PVGs in oncology from the healthcare providers' perspective in Germany.

methodsTwenty semi-structured telephone interviews were conducted with oncological healthcare providers in Germany between October and December 2021. Interviews were recorded and transcribed verbatim. Mayring's qualitative content analysis with MAXQDA software was utilised to analyse the data.

resultsA total of 20 healthcare providers (14 female, 6 male), mainly working as psychotherapists/psycho-oncologists and physicians, participated. Most participants (75%) were aware of the existence of PVGs. The content was predominantly perceived as comprehensible and relevant, whereas opinions on the design and format were mixed. The perceived lack of up-to-date information limited participants' trust in the content. Most felt that PVGs positively impact healthcare owing to the fact that they improve patients' knowledge about their disease. Additionally, PVGs served as a guide and helped healthcare providers structure physician-patient talks. Healthcare provider's unawareness of the existence of PVGs was cited as an obstructive factor to its dissemination to patients.

conclusionLimited knowledge of the existence of PVGs among healthcare providers, coupled with alternative patient information, hinders the use and dissemination of PVGs in healthcare. However, the applicability of PVGs seemed to be acceptable owing to their content and good comprehensibility, especially with respect to physician-patient communication.

Indexed as

Health PersonnelPhysiciansAwarenessFemaleGermanyHumansMaleMedical OncologyConsumer health informationHealthcare providersOncologyPatient informationPatient version of clinical practice guidelinesQualitative interviews

Identifiers

PMID38439061
PMCPMC10913627
OpenAlexW4392380872

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.