Evidence map›Paper›PMID 38435322›Full record

ArticleAutism in adulthood2024

Building Community and Identity Online: A Content Analysis of Highly Viewed #Autism TikTok Videos.

Daniel Gilmore, Deondray Radford, Meghan K Haas, Morgan Shields, Lauren Bishop, Brittany Hand

Open access · greenAbstract read
In one paragraph

Article in Autism in adulthood, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
26.9field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 28 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Daniel GilmoreSchool of Health and Rehabilitation Sciences, The Ohio State University, Columbus, Ohio, USA.ORCID https://orcid.org/0000-0003-4005-2799
Deondray RadfordSchool of Health and Rehabilitation Sciences, The Ohio State University, Columbus, Ohio, USA.
Meghan K HaasSandra Rosenbaum School of Social Work, University of Wisconsin-Madison, Madison, Wisconsin, USA.
Morgan ShieldsWashington University in St. Louis, St Louis, Missouri, USA.
Lauren BishopSandra Rosenbaum School of Social Work, University of Wisconsin-Madison, Madison, Wisconsin, USA.
Brittany HandSchool of Health and Rehabilitation Sciences, The Ohio State University, Columbus, Ohio, USA.ORCID https://orcid.org/0000-0003-2026-8461
The Ohio State University · USUniversity of Wisconsin–Madison · USWashington University in St. Louis · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: TikTok is a popular social media site for connecting with others online where many users also access and share health-related information. Previous studies have characterized information shared about specific disabilities on TikTok, but descriptions of autism-related content are lacking. Understanding the information shared about autism on TikTok is important to understanding health communication in this space, the lived experiences of autistic people, and the role that social media platforms play in building community through connection, understanding, and inclusion. Methods: We used an open-source data scraper to identify and download videos with at least 1 million views and that used the hashtag #autism from TikTok. Using a joint inductive and deductive approach, we performed a content analysis of videos. We identified six content topics that described video content (e.g., positive social interactions and features of autism), and three categories that described video purpose (e.g., educational, experiential, and observational). We used descriptive statistics to describe characteristics of who was in the TikTok videos. Results: We analyzed Conclusions: Highly viewed #autism TikTok videos primarily share autistic people's individual experiences rather than providing general education about autism. However, autistic Black, Indigenous, and people of color may have difficulty finding others that represent them along both disability and racial dimensions. Future research should investigate autistic people's motivations for using TikTok, and how #autism content shapes social discourse about autism.

Indexed as

autismsocial mediaTikTok

Identifiers

PMID38435322
PMCPMC10902280
OpenAlexW4383217638

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.