Evidence map›Paper›PMID 38408953›Full record

ArticleBMC palliative care2024

The state of transience, and its influence on the wish to die of advanced disease patients: insights from a qualitative phenomenological study.

Alazne Belar, Maria Arantzamendi, Philip Larkin, Iñaki Saralegui, Yolanda Santesteban, Nerea Alonso, Marina Martínez, Carlos Centeno

Abstract readMulticenter Study
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Alazne BelarInstitute for Culture and Society, University of NavarraIdiSNA, Pamplona, Spain. abelar@unav.es.
Maria ArantzamendiInstitute for Culture and Society, University of NavarraIdiSNA, Pamplona, Spain. marantz@unav.es.
Philip LarkinPalliative and Supportive care service, University Hospital of Lausanne and University of Lausanne, Lausanne, Switzerland.
Iñaki SaraleguiOSI ARABA, Osakidetza, Vitoria-Gasteiz, Spain.
Yolanda SantestebanHospital San Juan de Dios, Obra Social "La Caixa", Pamplona, Spain.
Nerea AlonsoOSI ARABA, Osakidetza, Vitoria-Gasteiz, Spain.
Marina MartínezClínica Universidad de Navarra, IdiSNA, Pamplona, Spain.
Carlos CentenoInstitute for Culture and Society, University of Navarra, Clínica Universidad de Navarra, IdiSNA, Pamplona, Spain.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe experience of Wish to Die is common in patients living with Advanced Disease. It has been studied worldwide and qualitative studies have contributed to the understanding of the complexity of the phenomenon of the WTD but a deeper understanding on the individual's views is still needed. The objective of this study was to identify common characteristics of the experience of wish to die in advanced disease.

methodsA phenomenological study was carried out with multicenter participation of patients with advanced disease who had expressed their wish to die to health professionals. Semi-structured interviews were employed to obtain an in-depth perspective of each patient's lived experience. A phenomenological analysis of the data collected was performed to describe and explore the characteristic aspects of the phenomenon under study.

resultsFourteen patients with advanced disease were interviewed. Most of them had cancer. In the analysis of the patients' accounts of their experiences, three common characteristics were identified: a) experiencing a state of transience; b) the attempt to reconnect with oneself; and c) additional disease-related aspects that influence the wish to die. Patients expressed the need for a safe space to address the wish to die and the importance of receiving care that considers both 'being' and 'doing'.

conclusionsPatients with advanced disease and wish to die experience a state of transience where the patient lives and ephemeral state of existence. Interventions focused on reinforcing the intrinsic value of the individual emerge as essential components of a compassionate accompaniment of those facing the wish to die.

Indexed as

Attitude to DeathPatientsEmpathyHumansQualitative ResearchDesire to dieLiving experiencePhenomenological approachQualitative researchWish to die

Identifiers

PMID38408953
PMCPMC10895803

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.