ArticleInternational journal of qualitative studies on health and well-being2024
"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition.
Article in International journal of qualitative studies on health and well-being, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it, 9 citations in OpenAlex.
- Experiences of Family Caregivers of Children Aged 1-23 Months Who Have Received Pediatric Palliative Care: A Systematic Review With Qualitative Metasynthesis.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2025Pooled it
- Translating palliative care narratives into art: An arts-based knowledge translation pilot with young adult artists.Palliative care and social practice · 2026Article
- Help us make a better flow in everyday life - family needs in home-based pediatric palliative care: a qualitative study.BMC palliative care · 2025Article
- Lived experience of adolescents growing up with siblings with cognitive-motor impairments: a hermeneutic phenomenological study.BMC psychology · 2025Article
- Important factors in municipality-based pediatric palliation from healthcare professionals' perspective: A qualitative study.Palliative care and social practice · 2025Article
- It's about living a normal life: parents' quality of life when their child has a life-threatening or life-limiting condition - a qualitative study.BMC palliative care · 2024Article
- Focusing on life rather than illness: the lived experience of children with life-threatening and life-limiting conditions-a qualitative study.Palliative care and social practice · 2024Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is a lack of knowledge regarding siblings' experiences of being a brother or sister of a child with a life-threatening or life-limiting condition. Siblings' perspectives are often expressed through their parents and not by siblings themselves.
methodThis study has a qualitative design within hermeneutic phenomenology. Thirteen siblings (ages 3-29) of children with cancer or genetic conditions participated in semi-structured interviews. Analyses followed a thematic analysis guided by van Manen's lifeexistentials.
resultsOne overall theme, "What about me?", illustrates that siblings of children with LT/LL conditions are dealing with their own challenges and needs in the situation while also struggling to receive attention from their parents. The overall theme derives from three subthemes: living with heavy strains, feeling disregarded, and having needs of one's own.
conclusionThe study revealed that siblings' own needs compete with the needs of the ill child, resulting in the risk of siblings taking a step back rather than expressing what they might actually need themselves. These findings can inform healthcare professionals on the importance of educating and supporting parents and the surrounding community close to the sibling, for example, by helping schoolteachers understand how to meet siblings' needs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.