Evidence map›Paper›PMID 38402358›Full record

SynthesisClinical child and family psychology review2024

Systematic Review: Patient and Public Involvement of Children and Young People in Mental Health Research.

Christina Totzeck, Anna Swantje van der Meer, Hanna Christiansen, Friederike Durlach, Kira Li Sanchez, Silvia Schneider

Abstract readSystematic Review
In one paragraph

Synthesis in Clinical child and family psychology review, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Article
  4. Child and adolescent psychiatry: challenges, solutions, opportunities, and future directions.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026
    Article
  5. Article
  6. A Youth-Led Evaluation of Adolescent Involvement in a Project on Development of Guidelines for Adolescent Involvement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Review
  13. Review
  14. Children and Young People's Priorities for Mental Health Research in Northern Ireland.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  15. Article
  16. Review
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Christina Totzeck *Mental Health Research and Treatment Center (FBZ), Ruhr University Bochum, Massenbergstrasse 9-13, 44787, Bochum, Germany. christina.totzeck@rub.de.ORCID 0000-0001-6750-9256
Anna Swantje van der Meer *Department of Child and Adolescent Psychology, Philipps University Marburg, Marburg, Germany.
Hanna ChristiansenDepartment of Child and Adolescent Psychology, Philipps University Marburg, Marburg, Germany.
Friederike DurlachDepartment of Child and Adolescent Psychology, Philipps University Marburg, Marburg, Germany.
Kira Li SanchezDepartment of Child and Adolescent Psychology, Philipps University Marburg, Marburg, Germany.
Silvia SchneiderMental Health Research and Treatment Center (FBZ), Ruhr University Bochum, Massenbergstrasse 9-13, 44787, Bochum, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivePatient and public involvement (PPI) is an essential ethical component in mental health research, and represents a major opportunity to improve translational mental health research. The goals of this review were to (1) provide a comprehensive overview of empirical research focusing on PPI of children and young people (CYP) in mental health research studies; (2) evaluate the results with CYP and parents of those affected; and (3) derive recommendations for PPI of CYP in future mental health research studies.

methodsBased on an extensive literature review following the PRISMA guidelines, studies including CYP (age range: 0-21 years) in mental health research were identified and examined along a two-part analysis process considering their usability for mental health research. The conclusions drawn from the studies concerning CYP involvement were summarized and recommendations derived.

resultsOverall, 19 articles reported PPI of CYP (age range: 10-26 years) in mental health research and were included for further analyses. The integrated studies differed in the type of PPI, and in the way the participation and involvement processes were presented.

conclusionProgress has been made in engaging CYP in mental health research, but there is a need for international standards, operationalization, and evaluation measures. Future research should go beyond merely reporting the PPI process itself. It should clearly indicate how and to what extent feedback from these PPI members was incorporated throughout the research process.

Indexed as

Mental HealthPatient ParticipationAdolescentAdultChildChild, PreschoolHumansInfantInfant, NewbornParentsResearch DesignYoung AdultChildhood and adolescenceMental health researchParticipationPatient and public involvementPPI

Identifiers

PMID38402358
PMCPMC10920437

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.