Evidence map›Paper›PMID 38398235›Full record

ArticleJournal of clinical medicine2024

Use of the Assessment of Caregiver Experience with Neuromuscular Disease (ACEND) in Spinal Muscular Atrophy.

Laurey Brown, Katie Hoffman, Chiara Corbo-Galli, Siyuan Dong, Katelyn Zumpf, Christa Weigel, Colleen Blomgren, Hannah Munson, Jessa Bidwell, Vamshi Rao and 3 more

Open access · goldAbstract read
In one paragraph

Article in Journal of clinical medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.4field-weighted citation impact, top 40% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 2 institutions in 1 country.

Laurey BrownDepartment of Rehabilitation Services, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.ORCID 0009-0001-5858-338X
Katie HoffmanDepartment of Rehabilitation Services, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.
Chiara Corbo-GalliWeinberg College of Arts and Sciences, Northwestern University, Evanston, IL 60208, USA.
Siyuan DongDepartment of Preventive Medicine, Division of Biostatistics, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.ORCID 0000-0001-8719-137X
Katelyn ZumpfDepartment of Preventive Medicine, Division of Biostatistics, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.
Christa WeigelDepartment of Rehabilitation Services, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.
Colleen BlomgrenDepartment of Rehabilitation Services, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.
Hannah MunsonDivision of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.
Jessa BidwellDivision of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.
Vamshi RaoDivision of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.
Nancy L KuntzDivision of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.ORCID 0000-0003-2253-5156
Abigail SchwaedeDivision of Neurology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.
Kristin J KrosschellDepartment of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.ORCID 0000-0003-2879-5055
Lurie Children's Hospital · USNorthwestern University · US

Funding

Northwestern University Clinical and Translational Science Institute (NUCATS)UL1TR001422 · NCATS · NORTHWESTERN UNIVERSITY AT CHICAGO · PI D'AQUILA, RICHARD · 2015 to 2023
$56.8M
NCATS NIH HHS UL1 TR001422NCATS NIH HHS UL1TR001422.
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

ACENDcaregiver burdenneuromuscularpediatricquality of lifespinal muscular atrophy

Identifiers

PMID38398235
PMCPMC10889380
OpenAlexW4391559916

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.