Evidence map›Paper›PMID 38397354›Full record

ArticleChildren (Basel, Switzerland)2024

NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families.

Paige Terrien Church, Maya Dahan, Amy Rule, Annie Janvier, Jane E Stewart, John S Maypole, Darcy Fehlings, Jonathan S Litt, Rudaina Banihani

Abstract read
In one paragraph

Article in Children (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Guideline
  2. Article
  3. Article
  4. Integrating parent voices into research at the extremes of prematurity: what are we doing and where should we go?Journal of perinatology : official journal of the California Perinatal Association · 2025
    Review
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Paige Terrien ChurchBeth Israel Deaconess Medical Center, Boston, MA 02215, USA.
Maya DahanSunnybrook Health Sciences Centre, Toronto, ON M4N 3M5, Canada.ORCID 0000-0002-4717-0598
Amy RuleChildren's Healthcare of Atlanta, Atlanta, GA 30342, USA.
Annie JanvierCHU Sainte-Justine, Montreal, QC H3T 1C5, Canada.
Jane E StewartBeth Israel Deaconess Medical Center, Boston, MA 02215, USA.
John S MaypoleBoston Medical Center, Boston, MA 02118, USA.
Darcy FehlingsHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON M4G 1R8, Canada.
Jonathan S LittBeth Israel Deaconess Medical Center, Boston, MA 02215, USA.ORCID 0000-0002-8748-2449
Rudaina BanihaniSunnybrook Health Sciences Centre, Toronto, ON M4N 3M5, Canada.ORCID 0000-0002-3865-3045

Funding

US Department of Health and Human Services UA6MC32492
6 · The paper itself

Abstract

The Neonatal Intensive Care Unit (NICU) has a language and culture that is its own. For professionals, it is a place of intense and constant attention to microdetails and cautious optimism. For parents, it is a foreign place with a new and unique language and culture. It is also the setting in which they are introduced to their child and parenthood for this child. This combination has been referred to as an emotional cauldron. The neonatal ethics literature mainly examines complex ethical dilemmas about withholding/drawing life sustaining interventions for fragile children. Rarely are everyday ethics or mundane ethics discussed. Microethics describe the mundane, discrete moments that occur between patients/families and clinicians. A key piece of these microethics is the language used to discuss patient care. Perception of prognoses, particularly around long-term neurodevelopmental outcome, is shaped with the language used. Despite this, clinicians in the NICU often have no specific training in the long-term neurodevelopment outcomes that they discuss. This paper focuses on the microethics of language used to discuss long-term neurodevelopmental outcomes, the developmental neuroscience behind language processing, and offers recommendations for more accurate and improved communication around long-term outcomes with families with critically ill neonates.

Indexed as

ableismdisabilityethicsneurodevelopmental outcomesNICU

Identifiers

PMID38397354
PMCPMC10887718

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.