Evidence map›Paper›PMID 38391078›Full record

ReviewNursing reports (Pavia, Italy)2024

Experiences of People Living with Parkinson's Disease in Care Homes: A Qualitative Systematic Review.

Shannon Copeland, Tara Anderson, Gillian Carter, Christine Brown Wilson, Patrick Stark, Mihalis Doumas, Matthew Rodger, Emma O'Shea, Laura Creighton, Stephanie Craig and 4 more

Open access · goldAbstract readReview
In one paragraph

Review in Nursing reports (Pavia, Italy), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.8field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 5 citations in OpenAlex.

  1. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 2 institutions in 2 countries.

Shannon CopelandSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.
Tara AndersonSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.ORCID 0009-0005-3611-3431
Gillian CarterSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.ORCID 0000-0002-0155-1002
Christine Brown WilsonSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.ORCID 0000-0002-7861-9538
Patrick StarkSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.ORCID 0000-0003-2659-0865
Mihalis DoumasSchool of Psychology, Queen's University Belfast, Belfast BT9 7BL, UK.
Matthew RodgerSchool of Psychology, Queen's University Belfast, Belfast BT9 7BL, UK.
Emma O'SheaCentre for Gerontology and Rehabilitation, School of Medicine, University College Cork, T12 YN60 Cork, Ireland.
Laura CreightonSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.
Stephanie CraigSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.
James McMahonSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.ORCID 0000-0003-1418-6611
Arnelle GillisSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.
Sophie CrooksSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.
Gary MitchellSchool of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK.ORCID 0000-0003-2133-2998
Queen's University Belfast · GBUniversity College Cork · IE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIncidence of disability secondary to Parkinson's disease is increasing faster globally than any other neurological condition. The diverse appearance of symptomatology associated with Parkinson's, and the degenerative nature and subsequent functional decline, often increase dependence on caregivers for assistance with daily living, most commonly within a care home setting. Yet, primary literature and evidence synthesis surrounding these unique and complex care needs, challenges and the lived experiences of this population living in long-term nursing or residential facilities remains sparce. The aim of this review is to synthesize qualitative literature about the lived experience of people with Parkinson's disease living in care home settings.

methodsA systematic search of the literature was conducted in October 2023 across six different databases (CINAHL, Medline, EMBASE, PsycINFO, Scopus and Cochrane Library). The Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) was used to guide this review.

resultsFive articles met the inclusion criteria. Four themes were identified following evidence synthesis: (1) Unique pharmacological challenges. (2) Transitioning and adapting to care home life and routines. (3) Dignified care within care homes. (4) Multidisciplinary care vacuum in care homes.

conclusionThis review revealed the significant and unique challenges for people with Parkinson's disease when transitioning into care homes. These are exacerbated by wider social care challenges such as staffing levels, skill mixes and attitudes as well as a lack of disease-specific knowledge surrounding symptomatology and pharmacology. The lack of multi-disciplinary working and risk-adverse practice inhibited person-centred care and autonomy and reduced the quality of life of people living with Parkinson's disease in care homes. Recommendations for practice highlight training gaps, the need for consistent and improved interdisciplinary working and better person-centred assessment and care delivery.

Indexed as

care homesexperiencehealth and wellbeingneurological diseaseolder peopleParkinson’s diseasequality of lifesystematic review

Identifiers

PMID38391078
PMCPMC10885076
OpenAlexW4391883844

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.